Known-group validity of patient-reported outcome instruments and hemophilia joint health score v2. 1 in US adults with hemophilia: results from the Pain, Functional …

TW Buckner, M Wang, DL Cooper, NN Iyer… - Patient preference …, 2017 - Taylor & Francis
Background The Pain, Functional Impairment, and Quality of Life (P-FiQ) study was an
observational, cross-sectional assessment of the impact of pain on functional impairment …

Internal consistency and item-total correlation of patient-reported outcome instruments and hemophilia joint health score v2. 1 in US adult people with hemophilia …

M Wang, K Batt, C Kessler, A Neff, NN Iyer… - Patient preference …, 2017 - Taylor & Francis
Background The Pain, Functional Impairment, and Quality of Life study was an
observational, cross-sectional assessment of the impact of pain on functional impairment …

Construct validity of patient-reported outcome instruments in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study

K Batt, M Recht, DL Cooper, NN Iyer… - Patient preference and …, 2017 - Taylor & Francis
Background People with hemophilia (PWH) experience frequent joint bleeding, resulting in
pain and functional impairment. Generic and disease-specific patient-reported outcome …

Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study

CL Kempton, M Wang, M Recht, A Neff… - Patient preference …, 2017 - Taylor & Francis
Background Hemophilia is marked by frequent joint bleeding, resulting in pain and
functional impairment. Objective This study aimed to assess the reliability of five patient …

Impact of pain and functional impairment in US adults with haemophilia: Patient‐reported outcomes and musculoskeletal evaluation in the pain, functional impairment …

CL Kempton, M Recht, A Neff, M Wang… - …, 2018 - Wiley Online Library
Introduction Standardized and disease‐specific patient‐reported outcome (PRO)
instruments assessing pain, functional impairment and health‐related quality of life (HRQ …

Patient‐reported outcomes and joint status across subgroups of US adults with hemophilia with varying characteristics: Results from the Pain, Functional Impairment …

K Batt, L Boggio, A Neff, TW Buckner… - European journal of …, 2018 - Wiley Online Library
Introduction Pain and functional impairment associated with joint disease are major
problems for people with hemophilia, and impact on health‐related quality of life (HRQ oL) …

Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient‐reported outcome instruments in the Pain, Functional …

TW Buckner, K Batt, D Quon, M Witkop… - European journal of …, 2018 - Wiley Online Library
Introduction Pain, functional impairment, anxiety, and depression associated with joint
disease may affect health‐related quality of life (HRQoL) in people with hemophilia …

[HTML][HTML] Impact of pain and functional impairment in US adult people with hemophilia (PWH): patient-reported outcomes and musculoskeletal evaluation in the pain …

CL Kempton, M Recht, A Neff, M Wang, TW Buckner… - Blood, 2015 - Elsevier
Introduction: Pain and functional impairment associated with joint disease are major
problems affecting adults with congenital hemophilia. Various standardized and disease …

Factors associated with pain severity, pain interference, and perception of functional abilities independent of joint status in US adults with hemophilia: Multivariable …

CL Kempton, TW Buckner, M Fridman… - European journal of …, 2018 - Wiley Online Library
Introduction Levels of pain and dysfunction appear to differ among people with hemophilia
despite similar levels of joint disease. Objective To determine patient characteristics that …

[HTML][HTML] PND47 THE HEMOPHILIA UTILIZATION GROUP STUDY (HUGS-VB): HEALTH-RELATED QUALITY OF LIFE IN HEMOPHILIA B

JL Poon, M Lou, J Doctor, ZY Zhou… - Value in …, 2011 - valueinhealthjournal.com
Objectives To describe health-related quality of life (HRQoL) and health utility of persons
with hemophilia B, and to determine the association of these measures with self-reported …