PATIENT ADVOCACY-01 WHY IS NEURO-ONCOLOGY MISSING FROM CIVIL SOCIETY CANCER ADVOCACY AGENDA?

D Makumi, R Okumu, R Muya - Neuro-Oncology Advances, 2023 - academic.oup.com
BACKGROUND Cancer civil society and patient groups across Africa play a major role in
pressuring governments to develop, fund, and implement national cancer control plans and …

The role of brain tumor advocacy groups

M Rhee, P Mui, C Cadogan, J Imerman… - Current neurology and …, 2014 - Springer
The brain tumor community is a unique, underserved population that has not seen
significant improvements in survival over the last four decades. In the search for effective …

Patient advocacy approaches to improving care for breast and cervical cancer in East and Southern Africa

DA Kizub, JA Zujewski, JR Gralow, K Ndoh… - JCO Global …, 2020 - ascopubs.org
PURPOSE Breast and cervical cancer are the most common cancers among women in East
and Southern Africa, where mortality remains high because of late diagnosis and limited …

Cancer in Africa: supporting advocates to stop the runaway train

A Adamou, FT Odedina, J Torode… - Annals of oncology, 2013 - annalsofoncology.org
Until very recently, international health bodies such as the World Health Organisation (WHO)
concentrated their efforts on the prevention of contagious disease, while chronic …

Strategies for meaningful patient and public involvement in neuro-oncological research

K Piil, KB Johannessen, H Pappot - Neuro-Oncology Practice, 2024 - academic.oup.com
It is well-known how living with a central nervous system tumor can profoundly affect the
quality of life, primarily due to the high symptom burden, emotional distress and poor …

[HTML][HTML] Perspective of an Advocate-political advocacy in African cancer dialogue

K Asante-Shongwe - Infectious agents and cancer, 2013 - Springer
The burden of cancer is climbing in all of Africa, yet the continent's healthcare and political
systems have not prioritized cancer control and treatment-care. Sub-Saharan Africa is …

[HTML][HTML] Joining forces to overcome cancer: the Kenya cancer research and control stakeholder program

H Topazian, M Cira, SM Dawsey, J Kibachio… - Journal of cancer …, 2016 - Elsevier
Background Cancer is the third leading cause of mortality in Kenya, accounting for 7% of
annual deaths. The Kenyan Ministry of Health (MOH) is committed to reducing cancer …

Improving access to cancer testing and treatment in Kenya

LK Makau-Barasa, SB Greene… - Journal of Global …, 2017 - ascopubs.org
Purpose In response to the increasing cancer burden in Kenya, this study identified barriers
to patients seeking access to cancer testing and treatment and to clinicians in delivering …

Supportive care in neuro-oncology

HB Newton - Principles & Practice of Neuro-Oncology: A …, 2010 - books.google.com
The modern treatment of patients with brain tumor usually involves a team approach from a
dedicated group of physicians, nurses, and support staff who specialize in various aspects of …

International framework for cancer patient advocacy: empowering organizations and patients to create a national call to action on cancer

RM Schear, L Manasco, D McGoldrick… - Journal of Global …, 2015 - ascopubs.org
Purpose With the rate of cancer and other noncommunicable diseases (NCDs) growing
globally, cancer prevention and control efforts are critical internationally. Moreover, since the …