Discussion of public and patient involvement (PPI) in health economics (HE) research is
growing. There is much literature on PPI principles and standards, but little specifically …

Patient and public involvement (PPI) can be used in methods research, as well as applied
research, in health economics. However, methods research goals may seem quite abstract …

There is a consensus that the public should be involved in health research, and Patient and
Public Involvement and Engagement (PPIE) can be at many different stages of research. 1 In …

The disability movement first coined the phrase “Nothing about us without us” in the 1990s
[1]. This followed the consumerist movement in the 1980s where patients and the public …

Charged with ensuring that research produces useful evidence to inform health decisions,
the Patient-Centered Outcomes Research Institute (PCORI) requires investigators to engage …

Patient engagement in clinical research refers to the involvement of patients beyond the role
of research subject. To date, the goals of patient engagement have not been clearly defined …

To ensure that the information resulting from research is relevant to patients, the Patient‐
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …

The public and patients can be powerful sensors for shaping and powering healthcare
research. They are joining research teams as investigators and collaborators to co-produce …

ABSTRACT The Patient-Centered Outcomes Research Institute (PCORI), established in
2010, launched a new model of incorporating stakeholder perspectives into health care …

Introduction Engaging with patients about their lived experience of health and illness and
their experience within the healthcare system can help inform the provision of care, health …