System‐wide information about family carers of adults with intellectual/developmental disabilities—a scoping review of the literature

Y Lunsky, A Tint, S Robinson… - Journal of Policy and …, 2014 - Wiley Online Library
Family carers play an important role supporting individuals with intellectual and
developmental disabilities (I/DD) into adulthood. Funders of services often desire this …

The well-being of mothers of adolescents with developmental disabilities in relation to medical care utilization and satisfaction with health care

DB Mitchell, P Hauser-Cram - Research in Developmental Disabilities, 2008 - Elsevier
Parents of children with disabilities have been found to be more likely to experience stress
and depressive symptoms than parents of typically developing children as a result of the …

Access to Home-and Community-Based Services for Children with Disability: Academic Institutions' Role and Areas for Improvement

L Bruton, M Storey, J Gentile, TL Smith, P Bhatti… - Academic …, 2024 - Elsevier
Objective This project sought to describe provider-and parent-identified needs and barriers
to obtaining home-and community-based services (HCBS) for children with disability (CWD) …

Parents with learning disabilities: an audit of referrals made to a learning disability team

J Elvish, A Hames, S English, C Wills - Tizard Learning Disability …, 2006 - emerald.com
Annual increases in the number of parenting referrals made to a learning disability team
over a ten‐year period led to this audit. The increase in the number of these referrals …

Service provision for young people with intellectual disabilities and additional mental health needs: service‐providers' perspectives

K Scior, K Grierson - Journal of Applied Research in Intellectual …, 2004 - Wiley Online Library
Background Very little is known about young people with intellectual disabilities who
experience additional mental health problems. The perspective of service providers has …

Tell us more–People with developmental disability share experiences to enhance health care education: An exploratory study

T Archer, K Boyd, G Moores, NM Lidster… - Journal on …, 2018 - search.proquest.com
The prime objective of this qualitative study was to understand the health care experiences
of people with developmental disability (DD) in order to inform initial and continuous training …

Family‐centred health care for children with cerebral palsy

M Shevell, M Oskoui, E Wood, A Kirton… - … Medicine & Child …, 2019 - Wiley Online Library
Aim To identify characteristics of young children with cerebral palsy (CP), and intrinsic and
extrinsic factors, that may be associated with parental perceptions regarding family‐centred …

Patient and parent/guardian perspectives on the health care of adults with mental retardation

SC Voss Horrell, WE MacLean Jr… - Mental …, 2006 - meridian.allenpress.com
Individuals with mental retardation and their parents/guardians have long been neglected in
health care research. In this study we used a qualitative methodology to describe the …

Parents' experiences of raising adolescents with intellectual or developmental disabilities

J Kerr, J Sharry, C Wilson - Journal of Intellectual & Developmental …, 2023 - Taylor & Francis
Background Parents of children with intellectual or developmental disabilities have unique
challenges in navigating the developmental period of adolescence. The present study …

Experiences of parents of children with special needs at school entry: A mixed method approach

A Siddiqua, M Janus - Child: Care, Health and Development, 2017 - Wiley Online Library
Background The transition from pre‐school to kindergarten can be complex for children who
need special assistance due to mental or physical disabilities (children with 'special needs') …