“Family matters”: a conceptual framework for genetic testing in children

A McConkie-Rosell, GA Spiridigliozzi - Journal of genetic counseling, 2004 - Springer
Genetic testing in minor children presents a complex ethical and social problem. Current
guidelines state that genetic testing of children is recommended only under circumstances …

Ethical and policy issues in genetic testing and screening of children

Committee on Bioethics… - …, 2013 - publications.aap.org
The genetic testing and genetic screening of children are commonplace. Decisions about
whether to offer genetic testing and screening should be driven by the best interest of the …

Issues in genetic testing of children

JG Twomey - MCN: The American Journal of Maternal/Child …, 2006 - journals.lww.com
Commentary about the ethical issues involved in the genetic testing in children (GTIC) has
centered around beliefs that early testing of children when no medical benefits are …

Professional ambivalence: accounts of ethical practice in childhood genetic testing

M Arribas-Ayllon, S Sarangi, A Clarke - Journal of genetic counseling, 2009 - Springer
Childhood genetic testing raises complex ethical and moral dilemmas for both families and
professionals. In the family sphere, the role of communication is a key aspect in the …

Ethical and policy issues in pediatric genetics

LF Ross - American Journal of Medical Genetics Part C …, 2008 - Wiley Online Library
This article presents an overview to a special issue on ethical and policy issues in pediatric
genetics. It discusses challenges to current practices and policies with regard to newborn …

Technical report: ethical and policy issues in genetic testing and screening of children

LF Ross, HM Saal, KL David, RR Anderson - Genetics in Medicine, 2013 - nature.com
The genetic testing and genetic screening of children are commonplace. Decisions about
whether to offer genetic testing and screening should be driven by the best interest of the …

Ethics in genetic counselling

AJ Clarke, C Wallgren-Pettersson - Journal of Community Genetics, 2019 - Springer
Difficult ethical issues arise for patients and professionals in medical genetics, and often
relate to the patient's family or their social context. Tackling these issues requires sensitivity …

Wrestling with the future: should we test children for adult-onset genetic conditions?

CB Cohen - Kennedy Institute of Ethics Journal, 1998 - muse.jhu.edu
Genetics professionals have been reluctant to test children for adult-onset conditions
because they believe this would create psychosocial harm to children not counterbalanced …

“It just becomes much more complicated”: Genetic counselors' views on genetics and prenatal testing

S Markens - New Genetics and Society, 2013 - Taylor & Francis
Many social scientists and commentators have expressed concerns about the acceleration
of genetic medicine and testing in the last few decades. While there is a growing body of …

[图书][B] Genetic counselling: practice and principles

A Clarke - 1994 - books.google.com
Contributions to this study are drawn both from health professionals engaged in genetic
counselling and from observers and critics with backgrounds in law, philosophy, biology …