Working in a hospice and being able to focus on individualized, specialized end-of-life care
is a privilege for the hospice staff member. However, it also presents the hospice staff with …

Background: This study aimed to understand how caregivers make the transition to end-
stage caregiving and to illuminate its unique aspects using a stress process model …

Using a case study approach in this qualitative study, the authors examine perceptions of
the emotional challenges of hospice palliative care professionals. In-depth interviews were …

Objective: Previous studies reveal that many terminally ill patients never receive hospice
care. Among those who do receive hospice, many enroll very close to the time of death …

Although terminal care literature may address the importance of the family in the patient's
treatment, the family as a whole is seldom considered as the unit of care. A family system's …

The end of life is a highly emotive and critical period in the life course and families often play
a central role during this time. Despite significant sociological work on dying as a relational …

There is very little research into patients who suffer from a terminal and progressive illness
making decisions about health care in a hospice setting. What decision-making means to …

Abstract The National Hospice and Palliative Care Organization positions the patient and
family as a single unit of care. This conceptualization is supported in research regarding …

Understanding family dynamics is a key component in providing comprehensive care for
persons with progressive illnesses and their caregivers. The purpose of this study was to …

ObjectiveMany family caregivers and hospice patients experience role changes resulting
from advancing illness and the need for increased caregiver responsibility. Successful …