Tackling dilemmas in supporting'the whole person'in online patient communities

J Huh, R Patel, W Pratt - Proceedings of the SIGCHI Conference on …, 2012 - dl.acm.org
Online health communities that engage the patient as a whole person attend to personal
and medical needs in a holistic manner. Whether current communities structure interaction …

Weaving clinical expertise in online health communities

J Huh, W Pratt - Proceedings of the SIGCHI conference on human …, 2014 - dl.acm.org
Many patients visit online health communities to receive support. In face-to-face support
groups, health professionals facilitate peer-patients exchanging experience while adding …

Clinical questions in online health communities: the case of" See your doctor" threads

J Huh - Proceedings of the 18th ACM Conference on Computer …, 2015 - dl.acm.org
Online health communities are known to provide psychosocial support. However, concerns
for misinformation being shared around clinical information persist. An existing practice …

[PDF][PDF] PatientsLikeMe: empowerment and representation in a patient-centered social network

JR Brubaker, C Lustig, GR Hayes - CSCW'10; Workshop on research …, 2010 - academia.edu
We examine the patient networking site PatientsLikeMe relative to current trends in medicine
toward patientcentered care and empowerment. We focus on both patient and institutional …

Online health communities: an assessment of the influence of participation on patient empowerment outcomes

AC Johnston, JL Worrell, PM Di Gangi… - … Technology & People, 2013 - emerald.com
Purpose–The purpose of this paper is to examine how participation in an online health
community provides for direct benefits in the form of information utility and social support and …

[HTML][HTML] Patient moderator interaction in online health communities

J Huh, DW McDonald, A Hartzler… - AMIA Annual Symposium …, 2013 - ncbi.nlm.nih.gov
An increasing number of people visit online health communities to share experiences and
seek health information. Although studies have enumerated reasons for patients' visits to …

[HTML][HTML] Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's …

J Frost, M Massagli - Journal of medical Internet research, 2008 - jmir.org
Background: This project investigates the ways in which patients respond to the shared use
of what is often considered private information: personal health data. There is a growing …

Life transitions and online health communities: reflecting on adoption, use, and disengagement

M Massimi, JL Bender, HO Witteman… - Proceedings of the 17th …, 2014 - dl.acm.org
Online health communities are places where people can come together in order to
exchange social support at a particular point in an individual's life. There are, however …

[HTML][HTML] Personas in online health communities

J Huh, BC Kwon, SH Kim, S Lee, J Choo, J Kim… - Journal of biomedical …, 2016 - Elsevier
Many researchers and practitioners use online health communities (OHCs) to influence
health behavior and provide patients with social support. One of the biggest challenges in …

Examining peer-to-peer and patient-provider interactions on a social media community facilitating ask the doctor services

AL Nobles, EC Leas, M Dredze, JW Ayers - Proceedings of the …, 2020 - ojs.aaai.org
Abstract Ask the Doctor (AtD) services provide patients the opportunity to seek medical
advice using online platforms. While these services represent a new mode of healthcare …