Bioethics, population studies, and geneticophobia

FM Salzano - Journal of community genetics, 2015 - Springer
In any research of human populations, the classical principles of bioethics (respect for
autonomy, non-maleficence, beneficence, proportionality between risks and benefits, and …

Taking an early step in ethnobiological research: a proposal for obtaining prior and informed consent from indigenous peoples

A Medinaceli - Ethnobiology Letters, 2018 - JSTOR
Based on my own experiences from the field, in this paper I reflect on my work in Bolivia and
Guatemala, collaborating with the Tsimane'and Q'eqchi'peoples, respectively. The aim of …

[图书][B] Race to the Finish: Identity and Governance in an Age of Genomics

J Reardon - 2009 - degruyter.com
In the summer of 1991, population geneticists and evolutionary biologists proposed to
archive human genetic diversity by collecting the genomes of" isolated indigenous …

Genes, race and research ethics: who's minding the store?

LM Hunt, MS Megyesi - Journal of Medical Ethics, 2008 - jme.bmj.com
Background: The search for genetic variants between racial/ethnic groups to explain
differential disease susceptibility and drug response has provoked sharp criticisms …

The emergence of an ethical duty to disclose genetic research results: international perspectives

BM Knoppers, Y Joly, J Simard… - European Journal of …, 2006 - nature.com
The last decade has witnessed the emergence of international ethics guidelines discussing
the importance of disclosing global and also, in certain circumstances, individual genetic …

[HTML][HTML] Bioethics and genetic diversity from the perspective of UNESCO and non-governmental organizations

DRJ Macer - Human DNA: law and policy. International and …, 1997 - eubios.info
Today I have the pleasure to be in the Isle of Montreal, in Canada, in Quebec, in Hochelaga.
During the two days before this session there were some events which stimulated me to …

Cultural issues in genetic research with American Indian and Alaskan Native people

MB Bowekaty, DS Davis - IRB: Ethics & Human Research, 2003 - JSTOR
BY MALCOLM B. BOWEKATY AND DENA S. DAVIS here is much interest and activity in
genetic research with populations. Indeed, genetic research yields more information when …

Ethical aspects of genome diversity research: genome research into cultural diversity or cultural diversity in genome research?

I Ilkilic, NW Paul - Medicine, Health Care and Philosophy, 2009 - Springer
The goal of the Human Genome Diversity Project (HGDP) was to reconstruct the history of
human evolution and the historical and geographical distribution of populations with the …

Genetic and Genomic Research—Changing Patterns of Accountability

JE Lunshof, R Chadwick - Accountability in research, 2011 - Taylor & Francis
Debates about genomic science have raised questions about the implications for ethics and
accountability. Accountability has external and internal aspects. Whereas ethical review …

Population genomics and research ethics with socially identifiable groups

JL McGregor - Journal of law, medicine & ethics, 2007 - cambridge.org
The genetic revolution is well underway, with genetic research and knowledge expanding at
an exponential rate. Much of the new genetics research is focused on population groups …