Modeling the social determinants of caregiver burden among families of children with developmental disabilities

BM McManus, A Carle… - … on intellectual and …, 2011 - meridian.allenpress.com
This study described predictors of caregiver burden among parents of children with
developmental disabilities. The sample, obtained from the 2005–2006 National Survey of …

Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children.

SO Roper, DW Allred, B Mandleco… - Families, Systems, & …, 2014 - psycnet.apa.org
Using family systems theory as a theoretical framework, we investigated direct and indirect
associations between type of disability, caregiver burden, and sibling relationships with …

“When everything changes:” parent perspectives on the challenges of accessing care for a child with a disability

A Walker, ML Alfonso, G Colquitt, K Weeks… - Disability and health …, 2016 - Elsevier
Background Health disparities exist among individuals living in rural and urban contexts in
terms of access to health care and overall mortality. These disparities are typically greater for …

Financial and psychological stressors associated with caring for children with disability.

A Goudie, MR Narcisse, DE Hall… - Families, Systems, & …, 2014 - psycnet.apa.org
The magnitude of stress and associated health consequences experienced by caregivers
compromises their ability to effectively provide care to children, especially children with …

Family caregivers of adults with intellectual and developmental disabilities: Outcomes associated with US services and supports

HJ Williamson, EA Perkins - Mental Retardation, 2014 - meridian.allenpress.com
Individuals with intellectual and developmental disabilities (IDD) in the US predominantly
live with their family caregivers. As care delivery and support systems vary widely globally …

Modeling caregivers' perceptions of children's need for formal care: Physical function, intellectual disability, and behavior

CJ Fournier, MJ Davis, A Patnaik, TR Elliott… - Disability and Health …, 2010 - Elsevier
BACKGROUND: Like most caregivers, informal caregivers for children (typically parents)
with special needs supply the majority of the care provided. Formal care is sometimes …

System‐wide information about family carers of adults with intellectual/developmental disabilities—a scoping review of the literature

Y Lunsky, A Tint, S Robinson… - Journal of Policy and …, 2014 - Wiley Online Library
Family carers play an important role supporting individuals with intellectual and
developmental disabilities (I/DD) into adulthood. Funders of services often desire this …

The health of caregivers for children with disabilities: caregiver perspectives

NA Murphy, B Christian, DA Caplin… - Child: care, health and …, 2007 - Wiley Online Library
Background There are an estimated 5.9 million children with severe disabilities in the USA,
and most of them are cared for at home by their parents and families. Indirect evidence …

Disparities in unmet service needs among adults with intellectual and other developmental disabilities

MM Burke, T Heller - Journal of Applied Research in Intellectual …, 2017 - Wiley Online Library
Background Due to long waiting lists for services, many adults with intellectual and
developmental disabilities in the United States have unmet service needs. Little research …

Factors affecting the health of caregivers of children who have an intellectual/developmental disability

S Marquis, MV Hayes, K McGrail - Journal of Policy and …, 2019 - Wiley Online Library
There are a growing number of children with an ID/developmental disability. As well, there is
evidence of poor health in the caregivers of these children. This article describes a narrative …