“Waiting for Science to Catch up with Practice”: an examination of 10-year YouTube trends in discussions of chronic cerebral spinal venous insufficiency treatment for …

SM Hynes, S Ghahari, SJ Forwell - Informatics for Health and …, 2019 - Taylor & Francis
Objective: The objective of this longitudinal study examined, first, whether people with
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …

Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis

S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …

Patient-reported benefits of extracranial venous therapy: British Columbia CCSVI Registry

AD Sadovnick, IM Yee, K Attwell-Pope… - Canadian Journal of …, 2017 - cambridge.org
Objective Chronic cerebrospinal venous insufficiency (CCSVI) has been hypothesized to be
a risk factor for multiple sclerosis (MS). Venoplasty has been proposed as a treatment for …

[HTML][HTML] “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy

F Mazanderani, B O'Neill, J Powell - Patient education and counseling, 2013 - Elsevier
Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …

A Randomized, Controlled Trial of an Educational Intervention for MS Patients Concerning CCSVI (P05. 128)

D Rotstein, M Evans, M Hohol, P O'Connor - 2012 - AAN Enterprises
Objective: To assess opinions concerning CCSVI in a Canadian cohort of MS patients and to
determine whether a physician-designed educational tool would change patient opinions …

“Liberation treatment” for chronic cerebrospinal venous insufficiency in multiple sclerosis: the truth will set you free

G Tsivgoulis, S Faissner, K Voumvourakis… - Brain and …, 2015 - Wiley Online Library
Background Chronic cerebrospinal venous insufficiency (CCSVI) has recently been
introduced as a chronic state of impaired cerebral or cervical venous drainage that may be …

Percutaneous transluminal angioplasty for treatment of chronic cerebrospinal venous insufficiency in people with multiple sclerosis: a summary of a Cochrane …

EJ van Zuuren, Z Fedorowicz, E Pucci… - Journal of Neurology …, 2014 - jnnp.bmj.com
Background It has been recently hypothesised that chronic cerebrospinal venous
insufficiency (CCSVI) may be an important factor in the pathogenesis of multiple sclerosis …

CCSVI-A. A call to clinicans and scientists to vocalise in an Internet age

AR Gafson, G Giovannoni - Multiple Sclerosis and Related Disorders, 2014 - Elsevier
Abstract In 2008, Paulo Zamboni pioneered the 'liberation procedure'for treating multiple
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …

Chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis (MS): a critical review

C Zecca, C Gobbi - … (Formerly Current Drug Targets-CNS & …, 2011 - ingentaconnect.com
Multiple sclerosis (MS) is a chronic disease of the central nervous system with not yet
completely understood pathogenesis. The so called “chronic cerebrospinal venous …

Chronic cerebrospinal venous insufficiency

J Antel, A Thompson, W Carroll - Multiple Sclerosis Journal, 2010 - journals.sagepub.com
The initial peer-review publications by Zamboni and colleagues described cerebral venous
circulatory patterns in patients with multiple sclerosis (MS) that were distinct from those …