The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis
M Charalambous, A Kountouri, P Phylactou… - Research Involvement …, 2022 - Springer
Abstract Background Patient and Public Involvement (PPI) is the active partnership between
researchers, patients and laypeople in the process of creating research. PPI in stroke …
researchers, patients and laypeople in the process of creating research. PPI in stroke …
The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia …
M Charalambous, A Kountouri, JR Schwyter… - Research Involvement …, 2023 - Springer
Abstract Background Patient and Public Involvement (PPI) in aphasia research requires
researchers to include people with aphasia as research partners from the beginning of the …
researchers to include people with aphasia as research partners from the beginning of the …
How to engage people with aphasia in research: the BEFORE recommendations
M Charalambous, M Kambanaros - Journal of Clinical Practice in …, 2023 - Taylor & Francis
Patient and public involvement (PPI) is the active partnership between researchers, patients,
and the public in the process of creating and conducting research. The aim of this study was …
and the public in the process of creating and conducting research. The aim of this study was …
The ethics of patient and public involvement across the research process: towards partnership with people with aphasia
ABSTRACT Background Conducting Patient and Public Involvement (PPI) in health
research is a way of building knowledge that incorporates the experience of service users …
research is a way of building knowledge that incorporates the experience of service users …
Exploring patient and public involvement in stroke research: a qualitative study
M Harrison, R Palmer - Disability and rehabilitation, 2015 - Taylor & Francis
Purpose: To explore the experiences of patients and carers involved in patient and public
involvement (PPI) activities for stroke research. Methods: Semi-structured interviews …
involvement (PPI) activities for stroke research. Methods: Semi-structured interviews …
[HTML][HTML] Patient and public involvement in stroke research: a scoping review protocol
Background: Growing consensus supports public and patient involvement (PPI) in research
as the lived experience of patients, family carers and users of health and social care …
as the lived experience of patients, family carers and users of health and social care …
Stroke survivors partner in research: a case example of collaborative processes
A Kwok, D Cheung, M Gordon, E Mudryk… - Research Involvement …, 2022 - Springer
Abstract The Canadian Strategy for Patient-Oriented Research supports the inclusion of
patients as partners throughout the research process. Purposeful and meaningful …
patients as partners throughout the research process. Purposeful and meaningful …
Using a participatory learning and action (PLA) research approach to involve people with aphasia as co-researchers in service evaluation: An analysis of co …
R McMenamin, E Tierney, A MacFarlane - Aphasiology, 2018 - Taylor & Francis
Background: Qualitative research methodologies are increasingly used to capture and
promote our understanding of health and illness experiences. However, two specific …
promote our understanding of health and illness experiences. However, two specific …
Working together: Experiences of people with aphasia as co-researchers in participatory health research studies
R McMenamin, M Griffin, B Grzybowska, C Pound - Aphasiology, 2021 - Taylor & Francis
Background: People with aphasia have been engaging with research in a variety of ways.
There are few descriptions of how they are involved in participatory research methodologies …
There are few descriptions of how they are involved in participatory research methodologies …
Development of an “aphasia-accessible participant in research experience survey” through co-production
C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …
Everyone who participates in research should have the opportunity to provide feedback on …