The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia
Working Group, an internationally renowned campaigning group of people with dementia …

The patient perspective has been largely ignored in studies of Alzheimer's disease. The
person with dementia is often relegated to the status of object rather than legitimate …

Background: Understanding the health care experience of people with dementia and their
caregivers is becoming increasingly important given the growing number of affected …

In this paper, we present reflections from three research studies that have engaged with
creative approaches to qualitative research with people living with dementia. Creative …

Aim. The aim of this paper was to explore a range of strategies that were used to enable
older people with dementia to become actively engaged in research 'with'rather than …

Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life
of individuals with the condition, and can place considerable strain on informal carers and …

This chapter aims to explore some of the main concepts surrounding data collection, ethical
practice and social research conducted with people with dementia and their support …

Scotland's National Dementia Strategy calls for people with dementia and their carers to
give voice to what they see as the priorities for dementia research. We sent questionnaires …

Hearing the voices of people living with dementia assists in a better understanding of their
experiences. This understanding can pave the way for improved community-based service …

Background Qualitative research in dementia improves understanding of the experience of
people affected by dementia. Searching databases for qualitative studies is problematic …