Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies

K Murphy, F Jordan, A Hunter, A Cooney… - Dementia, 2015 - journals.sagepub.com
It is essential to understand the experience of living with dementia from the perspective of
the person with dementia so that services can be appropriately constructed. This review …

Living with early onset dementia: exploring the experience and developing evidence-based guidelines for practice

PB Harris, J Keady - Alzheimer's Care Today, 2004 - journals.lww.com
In contemporary society dementia is socially, culturally, and professionally constructed as an
older person's disease. And although the formal definition of dementia has changed over …

[图书][B] Excellence in dementia care: Research into practice

M Downs, B Bowers - 2014 - books.google.com
Page 1 SECOND EDITION Excellence in Dementia Care Research into Practice Edited by
Murna Downs & Barbara Bowers Page 2 Excellence in Dementia Care Research into practice …

Dementia: beyond structures of medicalisation and cultural neglect

MT Bruens - Ageing, meaning and social structure, 2013 - bristoluniversitypressdigital.com
The past few decades have seen major changes in scientific views about dementia
(Ballenger, 2006). Dementia was first viewed as a sign of normal ageing accompanied by an …

[图书][B] Dementia Care: An Evidence Based Textbook

T Adams, J Manthorpe - 2003 - books.google.com
Dementia presents challenges to all those working in health and social care. It is a
progressive disease that affects the person with dementia, their families and friends, and the …

A narrative review of evidence for the provision of memory services

S Banerjee - International Psychogeriatrics, 2015 - cambridge.org
Background: One common finding in analyses of health systems with respect to dementia is
that there is a “diagnosis gap” in dementia with less than a half of those with dementia ever …

Safe and inclusive research practices for qualitative research involving people with dementia: A review of key issues and strategies

S Novek, H Wilkinson - Dementia, 2019 - journals.sagepub.com
Aim Developing strategies to ensure the safe participation of people with dementia in
research is critical to support their wider inclusion in research and to advance knowledge in …

Qualitative research and its importance in adapting interventions

W Duggleby, S Peacock, J Ploeg… - Qualitative Health …, 2020 - journals.sagepub.com
Systematic approaches are essential when adapting interventions, so the adapted
intervention is feasible, acceptable, and holds promise for positive outcomes in the new …

Awareness of dementia and coping to preserve quality of life: a five-year longitudinal narrative study

K Thorsen, MCN Dourado… - International journal of …, 2020 - Taylor & Francis
Purpose To examine how people (< 65 years) with young-onset dementia (YOD) express
awareness of dementia and how they seem to handle awareness as a strategy to preserve …

Future lived experience: inclusive research with people living with dementia

V Williams, J Webb, S Read, R James… - Qualitative …, 2020 - journals.sagepub.com
People with a diagnosis of dementia have often been the subjects of qualitative research; by
contrast, this article sets out to reflect on the positioning of people living with dementia in …