Genetics and diseases of genetic origin inescapably involve families. Thus genetic
information obtained by testing one person may contain information of the same kind on one …

The increasing use of genetic information has emerged as an important concern worldwide
as scientific and technological advances continue to advance at lightening speed and as …

During the last decades, a better understanding of the influence of genetic factors on the
onset of illness and disease has evolved. Unfortunately, however, the information revealed …

Modern biobanking efforts consist of prospective collections of tissues linked to clinical data
for patients who have given informed consent for the research use of their specimens and …

The nature of some potential benefits and risks associated with genetic research is different
from the types of potential benefits and risks associated with other types of health research …

One of the many ethical challenges presented by research in genomics is that, although
informed consent to research has traditionally been a matter for the individual participant …

Broad genome‐wide testing is increasingly finding its way to the public through the online
direct‐to‐consumer marketing of so‐called personal genome tests. Personal genome tests …

Consent Codes: Upholding Standard Data Use Conditions | PLOS Genetics Skip to main
content Advertisement PLOS Genetics Browse Current Issue Journal Archive Collections Find …

In the medical context human genetic banking has attracted a quite different discourse, with
individual rights at the forefront: those relating to the informed consent of actual and potential …

It is often argued that concern with basic personal privacy suggests that individuals should
be allowed to decide in isolation whether to obtain genetic information through testing and …