Rights, autonomy, privacy, and confidentialityare concepts commonly used in
discussionsconcerning genetic information. When theseconcepts are thought of as denoting …

The article discusses the relationship between the notion of a moral right to personal self‐
determination, the notion of a moral right to know and the notion of a moral right not to know …

In this paper we question whether the concept of" genetic privacy" is a contradiction in terms.
And, if so, whether the implications of such a conclusion, inevitably impact on how society …

Tuija Takala and Matti Häyry raise two serious concerns about my paper,“Genetic links,
family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge.” …

Genetics and diseases of genetic origin inescapably involve families. Thus genetic
information obtained by testing one person may contain information of the same kind on one …

The fact that genetic information about one person can be of value to others poses an
important challenge to the primacy of respect for the principle of autonomy in medicine …

One of the much debated issues around the evolving human genetics is the question of the
right to know versus the right not to know. The core question of this theme is whether an …

People have a powerful interest in geneticprivacy and its associated claim to ignorance, and
some equally powerful desires to beshielded from disturbing information are oftenvoiced …

Confidentiality in genetic testing posesimportant ethical challenges to the currentprimacy of
respect for autonomy and patientchoice in health care. It also presents achallenge to …

The development of human genetics raises a wide range of important ethical questions for
us all. The interpersonal dimension of genetic information in particular means that genetics …