DNA on loan: issues to consider when carrying out genetic research with aboriginal families and communities

L Arbour, D Cook - Public Health Genomics, 2006 - karger.com
In the current research milieu where genetic etiology is considered a critical component in
the discovery of pathogenesis, aboriginal families and communities affected with genetic …

Genomic medicine must reduce, not compound, health inequities: the case for hauora-enhancing genomic resources for New Zealand

SP Robertson, JH Hindmarsh, S Berry… - The New Zealand …, 2018 - search.proquest.com
Precision medicine seeks to draw on data from both individuals and populations across
disparate domains to influence and support diagnosis, management and prevention in …

Bridging the divide between genomic science and indigenous peoples

B Jacobs, J Roffenbender, J Collmann… - Journal of Law …, 2010 - cambridge.org
The new science of genomics endeavors to chart the genomes of individuals around the
world, with the dual goals of understanding the role genetic factors play in human health and …

Indigenous genomics

V Hayes - Science, 2011 - science.org
Studies of indigenous peoples are a crucial part of genomic research, not only to define the
extent of human diversity but to provide medical benefit to all people. There are more than …

[HTML][HTML] The emergence of genomic research in Africa and new frameworks for equity in biomedical research

AR Bentley, S Callier, C Rotimi - Ethnicity & disease, 2019 - ncbi.nlm.nih.gov
Individuals with African ancestry have the greatest genomic diversity in the world, yet they
have been underrepresented in genomic research. To advance our understanding of human …

Toward an open access genomics database of South Africans: ethical considerations

A Gooden, D Thaldar - Frontiers in Genetics, 2023 - frontiersin.org
Genomics research holds the potential to improve healthcare. Yet, a very low percentage of
the genomic data used in genomics research internationally relates to persons of African …

Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African …

F Musvipwa, A Wonkam, B Berkman, J de Vries - BMC Medical Ethics, 2024 - Springer
Background Genetic research can yield information that is unrelated to the study's objectives
but may be of clinical or personal interest to study participants. There is an emerging but …

Guideline for feedback of individual genetic research findings for genomics research in Africa

A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …

From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians

GH Soares, J Hedges, S Sethi, B Poirier… - Medicine, Health Care …, 2023 - Springer
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …

Participatory research with a rural Aboriginal Community Controlled Health Organisation: lessons learned using the CONSIDER statement

H Beks, T Amos, J Bell, J Ryan, J Hayward… - Rural and remote …, 2022 - search.informit.org
Context: In Australia, Aboriginal Community Controlled Health Organisations (ACCHOs) are
geographically proximal to where Aboriginal and Torres Strait Islander People reside and …