Background Generally, there is unanimity about the value of community engagement in
health-related research. There is also a growing tendency to view genetics and genomics …

Genomic research has the potential to increase knowledge in health sciences, but the
process has to ensure the safety, integrity and well-being of research participants. A legal …

Aboriginal populations1, 2 raises ethical concerns. Neither study describes any
consultations with First Nations or Métis community members in the formulation of the …

Rare diseases (RD) are typically complex, chronic, often multisystem, and frequently genetic
disorders associated with significant morbidity and mortality. They affect up to 6–8% of the …

Purpose Against a historical backdrop of researchers who violated trust through lack of
benefit sharing, transparency, and engagement, efforts are underway to develop better …

Globally, there is a recognised need that all populations should be able to access the
benefits of genomics and precision medicine. However, achieving this remains constrained …

The conduct of genomic research in South Africa (SA) raises a number of ethical challenges
that need to be addressed in its design and execution. These include, for example …

Introduction Conducting ethical and high-quality health research is crucial for informing
public health policy and service delivery to reduce the high and inequitable burden of …

Background Racial health disparities are only likely to be meaningfully improved by tailoring
public health and clinical interventions to the specific needs of Indigenous people and their …

This paper explores the manners in which Indigenous and allied non-Indigenous
researchers, medical directors, and knowledge-keepers (among others) extend the ethical …