Deficit-based indigenous health research and the stereotyping of indigenous peoples

SL Hyett, C Gabel, S Marjerrison… - Canadian Journal of …, 2019 - erudit.org
Health research tends to be deficit-based by nature; as researchers we typically quantify or
qualify absence of health markers or presence of illness. This can create a narrative with far …

A Critical Appraisal of Protections for Aborginal Communities in Biomedical Research

C Weijer, JA Anderson - Jurimetrics, 2001 - HeinOnline
As scientists target communities for research into the etiology, especially the genetic
determinants of common diseases, there have been calls for the protection of communities …

Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey

LJ Burchill, A Kotevski, DLM Duke… - Medical Journal of …, 2023 - Wiley Online Library
Objectives To assess the use of NHMRC Indigenous research guidelines by Australian
researchers and the degree of Aboriginal and Torres Strait Islander governance and …

[PDF][PDF] A genome project for Māori and Pasifika: charting a path to equity in genomic medicine for Aotearoa

MA Kennedy - The New Zealand Medical Journal (Online), 2018 - nzmj.org.nz
Ever since completion of the human genome project nearly two decades ago, 1 the
application of genomic medicine has promised a great deal. Over the past decade, this …

[HTML][HTML] Evaluating the promise of inclusion of African ancestry populations in genomics

AR Bentley, SL Callier, CN Rotimi - NPJ genomic medicine, 2020 - nature.com
The lack of representation of diverse ancestral backgrounds in genomic research is well-
known, and the resultant scientific and ethical limitations are becoming increasingly …

Aboriginal and Torres Strait Islander health research and the conduct of longitudinal studies: issues for debate

N Grove, M Brough, C Canuto, A Dobson - Australian and New Zealand …, 2003 - Elsevier
Abstract The National Health and Medical Research Council, Research Agenda Working
Group (RAWG), and the literature on Indigenous health have identified the need to fill gaps …

Connecting to Country: An Australian Indigenous metagenomics strategy, environmental scan and research gap report

K Arabena, C Holland, L Penny - 2021 - policycommons.net
The purpose of this report is to assist the Indigenous Australian Genomics Committee of the
Commonwealth Department of Health in identifying current research, clinical services and …

Engaging Maori in Biobanking and Genetic Research

A Beaton, B Smith, V Toki, K Southey… - … Indigenous Policy Journal, 2015 - JSTOR
Publically funded biobanking initiatives and genetic research should contribute towards
reducing inequalities in health by reducing the prevalence and burden of disease. It is …

[HTML][HTML] Ethical and legal implications of whole genome and whole exome sequencing in African populations

GEB Wright, PGJ Koornhof, AA Adeyemo, N Tiffin - BMC Medical Ethics, 2013 - Springer
Background Rapid advances in high throughput genomic technologies and next generation
sequencing are making medical genomic research more readily accessible and affordable …

Community leaders' perspectives on engaging African Americans in biobanks and other human genetics initiatives

AG Buseh, PE Stevens, S Millon-Underwood… - Journal of community …, 2013 - Springer
There is limited information about what African Americans think about biobanks and the
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …