Deficit-based indigenous health research and the stereotyping of indigenous peoples
SL Hyett, C Gabel, S Marjerrison… - Canadian Journal of …, 2019 - erudit.org
Health research tends to be deficit-based by nature; as researchers we typically quantify or
qualify absence of health markers or presence of illness. This can create a narrative with far …
qualify absence of health markers or presence of illness. This can create a narrative with far …
A Critical Appraisal of Protections for Aborginal Communities in Biomedical Research
C Weijer, JA Anderson - Jurimetrics, 2001 - HeinOnline
As scientists target communities for research into the etiology, especially the genetic
determinants of common diseases, there have been calls for the protection of communities …
determinants of common diseases, there have been calls for the protection of communities …
Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey
LJ Burchill, A Kotevski, DLM Duke… - Medical Journal of …, 2023 - Wiley Online Library
Objectives To assess the use of NHMRC Indigenous research guidelines by Australian
researchers and the degree of Aboriginal and Torres Strait Islander governance and …
researchers and the degree of Aboriginal and Torres Strait Islander governance and …
[PDF][PDF] A genome project for Māori and Pasifika: charting a path to equity in genomic medicine for Aotearoa
MA Kennedy - The New Zealand Medical Journal (Online), 2018 - nzmj.org.nz
Ever since completion of the human genome project nearly two decades ago, 1 the
application of genomic medicine has promised a great deal. Over the past decade, this …
application of genomic medicine has promised a great deal. Over the past decade, this …
[HTML][HTML] Evaluating the promise of inclusion of African ancestry populations in genomics
AR Bentley, SL Callier, CN Rotimi - NPJ genomic medicine, 2020 - nature.com
The lack of representation of diverse ancestral backgrounds in genomic research is well-
known, and the resultant scientific and ethical limitations are becoming increasingly …
known, and the resultant scientific and ethical limitations are becoming increasingly …
Aboriginal and Torres Strait Islander health research and the conduct of longitudinal studies: issues for debate
Abstract The National Health and Medical Research Council, Research Agenda Working
Group (RAWG), and the literature on Indigenous health have identified the need to fill gaps …
Group (RAWG), and the literature on Indigenous health have identified the need to fill gaps …
Connecting to Country: An Australian Indigenous metagenomics strategy, environmental scan and research gap report
K Arabena, C Holland, L Penny - 2021 - policycommons.net
The purpose of this report is to assist the Indigenous Australian Genomics Committee of the
Commonwealth Department of Health in identifying current research, clinical services and …
Commonwealth Department of Health in identifying current research, clinical services and …
Engaging Maori in Biobanking and Genetic Research
A Beaton, B Smith, V Toki, K Southey… - … Indigenous Policy Journal, 2015 - JSTOR
Publically funded biobanking initiatives and genetic research should contribute towards
reducing inequalities in health by reducing the prevalence and burden of disease. It is …
reducing inequalities in health by reducing the prevalence and burden of disease. It is …
[HTML][HTML] Ethical and legal implications of whole genome and whole exome sequencing in African populations
Background Rapid advances in high throughput genomic technologies and next generation
sequencing are making medical genomic research more readily accessible and affordable …
sequencing are making medical genomic research more readily accessible and affordable …
Community leaders' perspectives on engaging African Americans in biobanks and other human genetics initiatives
AG Buseh, PE Stevens, S Millon-Underwood… - Journal of community …, 2013 - Springer
There is limited information about what African Americans think about biobanks and the
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …