[HTML][HTML] Media, politics and science policy: MS and evidence from the CCSVI trenches

D Pullman, A Zarzeczny, A Picard - BMC medical ethics, 2013 - Springer
Abstract Background In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …

Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis

S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …

[HTML][HTML] “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy

F Mazanderani, B O'Neill, J Powell - Patient education and counseling, 2013 - Elsevier
Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …

[HTML][HTML] Scientific versus experiential evidence: discourse analysis of the chronic cerebrospinal venous insufficiency debate in a multiple sclerosis forum

J Koschack, L Weibezahl, T Friede, W Himmel… - Journal of Medical …, 2015 - jmir.org
Background The vascular hypothesis of multiple sclerosis (MS), called chronic cerebrospinal
venous insufficiency (CCSVI), and its treatment (known as liberation therapy) was …

[HTML][HTML] The internet racing ahead of the scientific evidence: the case of" liberation treatment" for multiple sclerosis

YD Fragoso - Arquivos de neuro-psiquiatria, 2011 - SciELO Brasil
Multiple sclerosis (MS) is a chronic neurological disease that typically affects young adults. A
recent publication suggested that MS might originate from insufficient blood drainage in …

[HTML][HTML] I knew what was going to happen if I did nothing and so I was going to do something”: Faith, hope, and trust in the decisions of Canadians with multiple …

J Snyder, K Adams, VA Crooks, D Whitehurst… - BMC health services …, 2014 - Springer
Background Chronic cerebrospinal venous insufficiency (CCSVI) treatment is an unproven
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …

“Liberation treatment” for chronic cerebrospinal venous insufficiency in multiple sclerosis: the truth will set you free

G Tsivgoulis, S Faissner, K Voumvourakis… - Brain and …, 2015 - Wiley Online Library
Background Chronic cerebrospinal venous insufficiency (CCSVI) has recently been
introduced as a chronic state of impaired cerebral or cervical venous drainage that may be …

Medicine, the media and political interests

W Lipworth, I Kerridge, B Morrell, C Bonfiglioli… - Journal of Medical …, 2012 - jme.bmj.com
The news media is frequently criticised for failing to support the goals of government health
campaigns. But is this necessarily the purpose of the media? We suggest that while the …

Media portrayal of stem cell research: towards a normative model for science communication

K Kamenova - Asian Bioethics Review, 2017 - Springer
As the field of science communication has matured over the past 50 years, there has been a
significant move away from the conventional understanding that mass media's role in the …

[HTML][HTML] The media and public health: where next for critical analysis?

L Henderson, S Hilton - Critical Public Health, 2018 - Taylor & Francis
It has been well established that the media play a crucial role in framing public health
debates and shaping public perceptions by selecting which issues are reported and how …