Media, politics and science policy: MS and evidence from the CCSVI trenches
D Pullman, A Zarzeczny, A Picard - BMC medical ethics, 2013 - Springer
Abstract Background In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis
S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …
[HTML][HTML] “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy
Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …
[HTML][HTML] Scientific versus experiential evidence: discourse analysis of the chronic cerebrospinal venous insufficiency debate in a multiple sclerosis forum
J Koschack, L Weibezahl, T Friede, W Himmel… - Journal of Medical …, 2015 - jmir.org
Background The vascular hypothesis of multiple sclerosis (MS), called chronic cerebrospinal
venous insufficiency (CCSVI), and its treatment (known as liberation therapy) was …
venous insufficiency (CCSVI), and its treatment (known as liberation therapy) was …
The internet racing ahead of the scientific evidence: the case of" liberation treatment" for multiple sclerosis
YD Fragoso - Arquivos de neuro-psiquiatria, 2011 - SciELO Brasil
Multiple sclerosis (MS) is a chronic neurological disease that typically affects young adults. A
recent publication suggested that MS might originate from insufficient blood drainage in …
recent publication suggested that MS might originate from insufficient blood drainage in …
“I knew what was going to happen if I did nothing and so I was going to do something”: Faith, hope, and trust in the decisions of Canadians with multiple sclerosis to …
Background Chronic cerebrospinal venous insufficiency (CCSVI) treatment is an unproven
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
“Liberation treatment” for chronic cerebrospinal venous insufficiency in multiple sclerosis: the truth will set you free
Background Chronic cerebrospinal venous insufficiency (CCSVI) has recently been
introduced as a chronic state of impaired cerebral or cervical venous drainage that may be …
introduced as a chronic state of impaired cerebral or cervical venous drainage that may be …
Addressing tensions when popular media and evidence-based care collide
G Schwitzer - BMC medical informatics and decision making, 2013 - Springer
Background Health care news stories have the potential to inform and educate news
consumers and health-care consumers about the tradeoffs involved in health-care decisions …
consumers and health-care consumers about the tradeoffs involved in health-care decisions …
The media and public health: where next for critical analysis?
L Henderson, S Hilton - Critical Public Health, 2018 - Taylor & Francis
It has been well established that the media play a crucial role in framing public health
debates and shaping public perceptions by selecting which issues are reported and how …
debates and shaping public perceptions by selecting which issues are reported and how …
Tweeting science and ethics: social media as a tool for constructive public engagement
AC Regenberg - The American Journal of Bioethics, 2010 - Taylor & Francis
Murdoch and Scott (2010) challenge us to think more deeply about the complex and
challenging practical realities of stem cell tourism. The authors describe the strong …
challenging practical realities of stem cell tourism. The authors describe the strong …