The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring

BL Jones, N Contro, KD Koch - Pediatrics, 2014 - publications.aap.org
Pediatric palliative care physicians have an ethical duty to care for the families of children
with life-threatening conditions through their illness and bereavement. This duty is …

[图书][B] Supporting the child and the family in paediatric palliative care

E Brown, B Warr - 2007 - books.google.com
Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive
overview of good practice in caring for terminally-ill children, young people and their …

Family support services in pediatric palliative care

CA Knapp, N Contro - American Journal of Hospice and …, 2009 - journals.sagepub.com
A fundamental premise of pediatric palliative care is that support is provided not only to the
ill child but to the family as well. In doing so, a number of services may be offered to family …

Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations

EC Meyer, MD Ritholz, JP Burns, RD Truog - Pediatrics, 2006 - publications.aap.org
OBJECTIVE. Despite recognition that dying children and their families have unique palliative
care needs, there has been little empirical inquiry of parent perspectives to improve the …

Palliative care for infants, children, adolescents, and their families

BP Himelstein - Journal of palliative medicine, 2006 - liebertpub.com
PEDIATRIC PALLIATIVE CARE is not about dying, rather it is about helping children and
families to live to their fullest while facing complex medical conditions. Family-centered …

How do we talk to the children? Child life consultation to support the children of seriously ill adult inpatients

C Sutter, T Reid - Journal of Palliative Medicine, 2012 - liebertpub.com
Background: Families with young children often struggle to talk about and cope with a
parent's life-threatening illness and potential death. Adult interdisciplinary palliative …

A framework for integrated pediatric palliative care: being with dying

CH Rushton - Journal of Pediatric Nursing, 2005 - Elsevier
Recent studies highlight the need for an integrated model for palliative and end-of-life
pediatric care. About 55,000 children die each year in the United States and, on any given …

Supporting parent caregivers of children with life-limiting illness

KD Koch, BL Jones - Children, 2018 - mdpi.com
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

Pediatric palliative care

JC Klick, J Hauer - Current problems in pediatric and adolescent health …, 2010 - Elsevier
Palliative care has always been a part of the care of children. It includes any intervention that
focuses on relieving suffering, slowing the progression of disease, and improving quality of …

When children die: Improving palliative and end-of-life care for children and their families

RE Behrman, MJ Field - 2003 - books.google.com
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-
altering experience. Except for the child who dies suddenly and without forewarning …