Using a genetic test result in the care of family members: how does the duty of confidentiality apply?
M Parker, A Lucassen - European Journal of Human Genetics, 2018 - nature.com
The use of genetic and genomic testing is becoming more widespread in healthcare and
more inherited explanations for family history of diseases or conditions are being uncovered …
more inherited explanations for family history of diseases or conditions are being uncovered …
Genetic risks and doctors' disclosure obligations—revisiting the duty of confidentiality
A de Paor - european Journal of health law, 2018 - brill.com
With developments in the field of genetics, new technologies such as genetic testing are fast
emerging. Although offering unparalleled opportunities, these developments raise many …
emerging. Although offering unparalleled opportunities, these developments raise many …
Genetic Data and the Data Protection Regulation: Anonymity, multiple subjects, sensitivity and a prohibitionary logic regarding genetic data?
D Hallinan, M Friedewald, P De Hert - Computer Law & Security Review, 2013 - Elsevier
Owing to the unique qualities of genetic data, there have been numerous criticisms of the
current data protection framework's ability to protect genetic data. It has been suggested that …
current data protection framework's ability to protect genetic data. It has been suggested that …
Genetic confidentiality: What's the big secret
PA Lombardo - U. Chi. L. Sch. Roundtable, 1996 - HeinOnline
The explosion of information generated by the Human Genome Project and related
advances in molecular biology come at a propitious time. Never before have Americans …
advances in molecular biology come at a propitious time. Never before have Americans …
Communicating genetic information in the family: enriching the debate through the notion of integrity
P Boddington, M Gregory - Medicine, Health Care and Philosophy, 2008 - Springer
Genetic information about one individual often has medical and reproductive implications for
that individual's relatives. There is a debate about whether policy on transmitting genetic …
that individual's relatives. There is a debate about whether policy on transmitting genetic …
Rethinking medical confidentiality: The impact of genetics
R Wachbroit - Suffolk UL Rev., 1993 - HeinOnline
The Human Genome Project and its attendant ethical, legal, and social problems extend
around the world, embracing many different cultures. Although the science is the same, its …
around the world, embracing many different cultures. Although the science is the same, its …
Protection of genomic data and the Australian Privacy Act: when are genomic data 'personal information'?
Sharing genomic data promises great benefits for health research as well as clinical
diagnoses and management. However, appropriate sharing is reliant upon privacy concerns …
diagnoses and management. However, appropriate sharing is reliant upon privacy concerns …
Privacy and disclosure in medical genetics examined in an ethics of care.
DC Wertz, JC Fletcher - 1991 - books.google.com
The progress of genetic knowledge magnifies existing ethical problems in medical genetics.
Among the most troubling types of problems-for medicine, patients, and the larger society …
Among the most troubling types of problems-for medicine, patients, and the larger society …
Comment on a view favoring ignorance of genetic information: Confidentiality, autonomy, beneficence and the right not to know
MC Bottis - European Journal of Health Law, 2000 - JSTOR
In June 1999, the European Journal of Health Law published an article, by Graeme Laurie,
on the right of the relatives of a patient not to know genetic information not only concerning …
on the right of the relatives of a patient not to know genetic information not only concerning …
Intra-familial obligations to communicate genetic risk information: what foundations? What forms?
G Nycum, BM Knoppers, D Avard - McGill JL & Health, 2009 - HeinOnline
Developments in genetics have been accompanied by, or have perhaps even instigated, a
shift in medical ethics. Stalwart ethical principles of the second half of the twentieth century …
shift in medical ethics. Stalwart ethical principles of the second half of the twentieth century …