Respecting Genetic Privacy: The ASU-SB Conference on Law, Science, and Technology
DH Kaye - Jurimetrics, 1999 - JSTOR
In an episode of Star Trek: The Next Generation, the crew and passengers of the Enterprise
were afflicted with a malady that nearly culminated in the destruction of the ship and the …
were afflicted with a malady that nearly culminated in the destruction of the ship and the …
Property rights in genetic information
RA Spinello - Ethics and information technology, 2004 - Springer
The primary theme of this paper is the normative case against ownership of one's genetic
information along with the source of that information (usually human tissues samples). The …
information along with the source of that information (usually human tissues samples). The …
Consent and Population genetic databases: a comparative analysis of the law in Iceland, Sweden, Estonia and the UK
HH Helgason - The Ethics and Governance of Human Genetic …, 2007 - cambridge.org
Ever since the birth of the idea of human rights, it has been generally accepted that human
beings should generally be free to make their own decisions, at least in their personal …
beings should generally be free to make their own decisions, at least in their personal …
Patient autonomy and relatives' right to know genetic information
R Gilbar - Med. & L., 2007 - HeinOnline
One of the most difficult issues doctors face is a conflict between their professional duties.
Such a conflict may arise when doctors know that information has implications not only for …
Such a conflict may arise when doctors know that information has implications not only for …
Genetic Information Access, a Legal Perspective: A Duty to Know or a Right Not to Know, and a Duty or Option to Warn?
It is often argued that concern with basic personal privacy suggests that individuals should
be allowed to decide in isolation whether to obtain genetic information through testing and …
be allowed to decide in isolation whether to obtain genetic information through testing and …
Genetic data and the research exemption: is the GDPR going too far?
K Pormeister - International Data Privacy Law, 2017 - academic.oup.com
The General Data Protection Regulation1 (GDPR) introduces a new and seemingly quite far-
reaching exemption to the general prohibition for the processing of genetic data. Namely …
reaching exemption to the general prohibition for the processing of genetic data. Namely …
Communicating consent
R Kukla - Hastings Center Report, 2009 - muse.jhu.edu
46 HASTINGS CENTER REPORT May-June 2009 that only direct oral encounters count as
agential communication, despite the fact that giving someone a written document is itself a …
agential communication, despite the fact that giving someone a written document is itself a …
Questioning the limits of genomic privacy
To the Editor: Recently, Im et al. 1 presented a method that can infer an individual's
participation in a study when regression coefficients from quantitative phenotypes are …
participation in a study when regression coefficients from quantitative phenotypes are …
[图书][B] Genetic discrimination and genetic privacy in a comparative perspective
JH Gerards, AW Heringa, HL Janssen - 2005 - books.google.com
During the last decades, a better understanding of the influence of genetic factors on the
onset of illness and disease has evolved. Unfortunately, however, the information revealed …
onset of illness and disease has evolved. Unfortunately, however, the information revealed …