Improving response rates through incentive and follow-up: the effect on a survey of physicians' knowledge of genetics.

ES Tambor, GA Chase, RR Faden… - … Journal of Public …, 1993 - ajph.aphapublications.org
OBJECTIVES. This study assessed efforts to increase response rates to a mailed physician
survey and examined whether, as a result, nonresponse bias was reduced. METHODS …

Genetic testing and genetic screening

PM McCarrick - Kennedy Institute of Ethics Journal, 1993 - muse.jhu.edu
In recent years there has been an enormous expansion in the knowledge that may be
gleaned from the testing of an individual's genetic material to predict present or future …

Genetic privacy: might there be a moral duty to share one's genetic information?

H Malm - The American Journal of Bioethics, 2009 - Taylor & Francis
In discussions about direct-to-consumer availability of genetic testing, much attention has
been given to identifying the various risks and benefits that individuals might incur. For …

Disclosure of familial genetic information: perceptions of the duty to inform

LS Lehmann, JC Weeks, N Klar, L Biener… - The American journal of …, 2000 - Elsevier
BACKGROUND: The familial implications of genetic information can lead to a conflict
between a physician's duties to maintain patient confidentiality and to inform at-risk relatives …

Direct-to-consumer genetic testing: an assessment of genetic counselors' knowledge and beliefs

KT Hock, KD Christensen, BM Yashar, JS Roberts… - Genetics in …, 2011 - nature.com
Purpose: Direct-to-consumer genetic testing is a new means of obtaining genetic testing
outside of a traditional clinical setting. This study assesses genetic counselors' experience …

An ethical imperative: genetics education for physicians and patients

JAK Kegley - Med. & L., 2003 - HeinOnline
The Human Genome project will result in a rapid increase in information about genetically
based disease and possible genetically based therapies and cures. In light of this, radical …

Are general practitioners willing and able to provide genetic services for common diseases?

MA Suchard, P Yudkin, JS Sinsheimer - Journal of Genetic Counseling, 1999 - Springer
Primary care in the United Kingdom has been advocated as an optimal location for the
provision of genetic services for common diseases. Little, however, is known about general …

Consumer perceptions of direct-to-consumer personalized genomic risk assessments

CS Bloss, L Ornowski, E Silver, M Cargill, V Vanier… - Genetics in …, 2010 - nature.com
Purpose: To evaluate consumer perceptions of direct-to-consumer personalized genomic
risk assessments and assess the extent to which consumer characteristics may be …

Family consent and the pursuit of better medicines through genetic research

G Renegar, P Rieser, P Manasco - Journal of Continuing …, 2001 - Wiley Online Library
Rapid changes in the science and technology related to genetic research are challenging
scientists, health care providers, ethicists, regulators, patient groups, and the pharmaceutical …

Genetic diseases and the duty to disclose

S Callier, R Simpson - AMA Journal of Ethics, 2012 - journalofethics.ama-assn.org
Amy, a long-term patient of yours, has been diagnosed with a bipolar disorder that has a
hereditary component likely to manifest itself in some of her relatives. While efforts to identify …