Examining transitions from youth to adult services for young persons with autism

MT Milen, DB Nicholas - Social Work in Health Care, 2017 - Taylor & Francis
ABSTRACT Autism Spectrum Disorder (ASD) presents pervasive challenges for individuals
throughout their lifetime. Although some financial, community, and individual supports are …

Barriers to receipt of services for young adults with autism

C Anderson, A Lupfer, PT Shattuck - Pediatrics, 2018 - publications.aap.org
OBJECTIVES: In this study, we examine experiences of families of young adults (YAs) on the
autism spectrum to better understand dynamics leading to poor YA outcomes. METHODS …

Development, feasibility, and acceptability of a nationally relevant parent training to improve service access during the transition to adulthood for youth with ASD

JL Taylor, F Pezzimenti, MM Burke, LS DaWalt… - Journal of Autism and …, 2022 - Springer
Many youth with autism spectrum disorder (ASD) face challenges accessing needed
services as they transition to adulthood. The present study describes the development …

Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use

KE Pickard, BR Ingersoll - Autism, 2016 - journals.sagepub.com
Research within the autism spectrum disorder field has emphasized the role of
socioeconomic status in shaping parents' ability to access services for their child with autism …

Family characteristics and children's receipt of autism services in low-resourced families

EA Karp, R Dudovitz, BB Nelson, W Shih… - …, 2018 - publications.aap.org
OBJECTIVES: Parents of children with autism spectrum disorder (ASD) face competing
demands when caring for their child and fulfilling family commitments. It remains unknown …

Parent-reported severity and health/educational services use among US children with autism: Results from a national survey

KE Zuckerman, NDB Friedman… - … of Developmental & …, 2017 - journals.lww.com
Objective: Little national data exist regarding service use patterns for children with autism
spectrum disorder (ASD) of varying severity. This study aimed to assess the relationship …

“There is No Help:” Caregiver Perspectives on Service Needs for Adolescents and Adults with Profound Autism

EF Ferguson, ML Barnett, JW Goodwin… - Journal of Autism and …, 2024 - Springer
The underrepresentation of individuals with profound autism (who require 24/7 access to
care) in autism research has resulted in limited knowledge about their service needs and a …

“You Had This Clean Window, But It was Glued Shut”: Identifying the Needs of Parents and Providers of Children and Youth with Autism Spectrum Disorders in Rural …

SB Vanegas, Y Xu, S Magaña, T Heller - Journal of Developmental and …, 2023 - Springer
Abstract Research on Autism Spectrum Disorders (ASD) has found significant disparities in
access to services and outcomes in rural communities. Little is known about service …

Barriers to service and unmet need among autistic adolescents and young adults

KJ Ishler, KA Berg, T Olgac, R Obeid, DE Biegel - Autism, 2023 - journals.sagepub.com
Many of the nearly six million autistic adolescents and adults in the United States require
support to navigate daily life. Family members often provide the first line of support for …

Young adults on the autism spectrum: The struggle for appropriate services

C Anderson, C Butt - Journal of Autism and Developmental Disorders, 2018 - Springer
Abstract In the United States, young adults with an autism spectrum disorder (ASD) lose
federally mandated supports upon leaving high school. To arrange adult services, families …