Mothers' adjustment to autism: Exploring the roles of autism knowledge and culture

ML Gordillo, A Chu, K Long - Journal of Pediatric Psychology, 2020 - academic.oup.com
Introduction Autism spectrum disorder (ASD) service-use disparities are well-documented
among racial/ethnic minorities. Yet the nuanced impact that culture has on barriers to ASD …

Child and family factors associated with the use of services for preschoolers with autism spectrum disorder

DW Irvin, M McBee, BA Boyd, K Hume… - Research in Autism …, 2012 - Elsevier
This study examines child and family characteristics thought to affect the dosage and type of
common in-school and private services (ie, speech language therapy (SLT), occupational …

“I know how to advocate”: Parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas… - Health services …, 2022 - journals.sagepub.com
Background: Parental advocacy is a dynamic process that changes depending on the
circumstances and needs of the child and parent. Communication deficits related to an …

Training parents of youth with autism spectrum disorder to advocate for adult disability services: Results from a pilot randomized controlled trial

JL Taylor, RM Hodapp, MM Burke… - Journal of autism and …, 2017 - Springer
This study presents findings from a pilot randomized controlled trial, testing a 12-week
intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for …

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

JKY Lai, JA Weiss - Autism Research, 2017 - Wiley Online Library
Abstract Individuals with Autism Spectrum Disorder (ASD) have a range of health,
community, and social support needs across the lifespan that create age‐specific …

[HTML][HTML] Mind the gap: An intervention to support caregivers with a new autism spectrum disorder diagnosis is feasible and acceptable

S Iadarola, M Pellecchia, A Stahmer, HS Lee… - Pilot and feasibility …, 2020 - Springer
Introduction Children with autism spectrum disorder (ASD) benefit when their caregivers can
effectively advocate for appropriate services. Barriers to caregiver engagement such as …

Community and social participation among individuals with autism spectrum disorder transitioning to adulthood

E Myers, BE Davis, G Stobbe, K Bjornson - Journal of autism and …, 2015 - Springer
Abstract Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor
psychosocial outcomes as adults. We described community and social participation in …

Social participation in a nationally representative sample of older youth and young adults with autism

GS Liptak, JA Kennedy, NP Dosa - Journal of Developmental & …, 2011 - journals.lww.com
Objective: To describe social participation and identify factors that affect it in a nationally
representative sample of adolescents and young adults with autism. Methods: Longitudinal …

Parents' and young adults' perspectives on transition outcomes for young adults with autism

C Sosnowy, C Silverman, P Shattuck - Autism, 2018 - journals.sagepub.com
Existing research shows that young adults with autism spectrum disorder have poorer
outcomes than their peers with other developmental disabilities in the key areas of …

Exploring sociodemographic predictors of parents' perceptions about their children's autism and their families' adjustment

GJ Rosenbrock, SS Mire, HJ Kim… - Research in …, 2021 - Elsevier
Background Diagnostic and treatment disparities exist among sociodemographically diverse
families with autism spectrum disorder (ASD). These disparities may be partially explained …