Participation in research by people with learning disability: origins and issues

C Kiernan - British journal of learning disabilities, 1999 - Wiley Online Library
'Traditional'research with people with learning disability is very much research on rather
than research with people. New models or paradigms of research place the 'subjects' of …

Practising partnership: involving people with learning difficulties in research

L Ward, K Simons - British Journal of Learning Disabilities, 1998 - Wiley Online Library
Traditionally, research has been done on people with learning difficulties, rather than with
them. However, attitudes to this issue are changing. On the one hand some people with …

Having a voice: Involving people with learning difficulties in research

J Minkes, R Townsley, C Weston… - British Journal of …, 1995 - Wiley Online Library
This article summarises a symposium presented at the 1993 BILD conference by
researchers based at the Norah Fry Research Centre, University of Bristol. The linking …

The conundrum of training and capacity building for people with learning disabilities doing research

M Nind, R Chapman, J Seale… - Journal of Applied …, 2016 - Wiley Online Library
Background This study explores the training involved when people with learning disabilities
take their place in the community as researchers. This was a theme in a recent UK seminar …

Involving people with learning disabilities in research: issues and possibilities

T Gilbert - Health & social care in the community, 2004 - Wiley Online Library
Advances in the social position of people with learning disabilities have led to a situation
where research and evaluation studies are increasingly required to include the views and …

Emergence of participatory methodology in learning difficulty research: understanding the context

AL Chappell - British journal of learning disabilities, 2000 - Wiley Online Library
The past few years have seen the development of an important debate over methodology in
disability research. The rise of emancipatory and participatory methodologies has meant that …

Setting up participatory research: a discussion of the initial stages

A Burke, J McMillan, L Cummins… - British Journal of …, 2003 - Wiley Online Library
Participatory research is becoming a very popular way of helping to empower people with
learning disabilities. All stages of this kind of research are conducted in partnership with non …

Follow the yellow brick road! People with learning difficulties as co‐researchers

J March, B Steingold, S Justice… - British Journal of …, 1997 - Wiley Online Library
This article is written by three people with learning difficulties. It is about our experience of
doing research. We are all members of Hackney People First and in 1994 we got involved in …

Inclusive learning disability research: The (nondisabled) researcher's role

J Walmsley - British Journal of Learning Disabilities, 2004 - Wiley Online Library
In this paper, the role of the nondisabled researcher who supports inclusive research in
learning disability is explored. The author argues for more transparency about the role in …

Research ethics committees and the benefits of involving people with profound and multiple learning disabilities in research

K Boxall, S Ralph - British Journal of Learning Disabilities, 2011 - Wiley Online Library
Accessible summary• People with learning disabilities who do not use speech are often left
out of research.• Ways of doing research which do not use words (for example, using …