[图书][B] The status of the family in law and bioethics: the genetic context

R Gilbar - 2017 - taylorfrancis.com
Where do a doctor's responsibilities lie in communicating diagnostic and predictive genetic
information to a patient's family members? On the one hand, a patient may wish to retain …

Intra-familial obligations to communicate genetic risk information: what foundations? What forms?

G Nycum, BM Knoppers, D Avard - McGill JL & Health, 2009 - HeinOnline
Developments in genetics have been accompanied by, or have perhaps even instigated, a
shift in medical ethics. Stalwart ethical principles of the second half of the twentieth century …

Patient autonomy and relatives' right to know genetic information

R Gilbar - Med. & L., 2007 - HeinOnline
One of the most difficult issues doctors face is a conflict between their professional duties.
Such a conflict may arise when doctors know that information has implications not only for …

Communicating genetic information in the family: the familial relationship as the forgotten factor

R Gilbar - Journal of Medical Ethics, 2007 - jme.bmj.com
Communicating genetic information to family members has been the subject of an extensive
debate recently in bioethics and law. In this context, the extent of the relatives' right to know …

[HTML][HTML] Genetic diseases and the duty to disclose

S Callier, R Simpson - AMA Journal of Ethics, 2012 - journalofethics.ama-assn.org
Amy, a long-term patient of yours, has been diagnosed with a bipolar disorder that has a
hereditary component likely to manifest itself in some of her relatives. While efforts to identify …

Genetic diagnostic information and the duty of confidentiality: ethics and law

C Ngwena, R Chadwick - Medical Law International, 1993 - journals.sagepub.com
The article explores in the context of the duty of confidentiality the ethical and legal
dilemmas posed for the doctor holding a patient's genetic information where there are two …

Genetics and confidentiality

DW Brock - American Journal of Bioethics, 2001 - Taylor & Francis
David Doukas and Jessica Berg's (2001) proposal for the use of a family covenant in genetic
testing has promise in helping ensure that genetic information with important consequences …

Concern for families and individuals in clinical genetics

M Parker, A Lucassen - Journal of Medical Ethics, 2003 - jme.bmj.com
Clinical geneticists are increasingly confronted with ethical tensions between their
responsibilities to individual patients and to other family members. This paper considers the …

[HTML][HTML] Ethics in genetic counselling

AJ Clarke, C Wallgren-Pettersson - Journal of Community Genetics, 2019 - Springer
Difficult ethical issues arise for patients and professionals in medical genetics, and often
relate to the patient's family or their social context. Tackling these issues requires sensitivity …

Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …