Silent voices: Family caregivers' narratives of involvement in palliative care

AS Tarberg, M Kvangarsnes, T Hole, M Thronæs… - Nursing …, 2019 - Wiley Online Library
Aim To explore how family caregivers experience involvement in palliative care. Design A
qualitative design with a narrative approach was used. Methods Purposive sampling and …

A desire to be seen: family caregivers' experiences of their caring role in palliative home care

M Linderholm, M Friedrichsen - Cancer nursing, 2010 - journals.lww.com
Primary health care is the base of Swedish healthcare, and many terminally ill patients are
cared for at home. A dying relative has a profound impact on his/her family members' …

“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

G Ateş, AF Ebenau, C Busa, Á Csikos, J Hasselaar… - BMC Palliative Care, 2018 - Springer
Background Family carers manage a wide range of responsibilities in the lives and care of
patients receiving palliative care. They fulfil multiple roles and perform activities within …

The perspectives of bereaved family members on their experiences of support in palliative care

T Lundberg, M Olsson, CJ Fürst - International journal of …, 2013 - magonlinelibrary.com
Aim: To explore family members' supportive interactions in palliative care and the emotional
experiences that they associate with these interactions. Methods: Qualitative individual …

How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study

YN Becqué, JAC Rietjens, A van der Heide… - BMC palliative …, 2021 - Springer
Background Family caregivers are crucial in providing end-of-life care at home. Without their
care, it would be difficult for many patients to die at home. In addition to providing care …

Feeling called to care: a qualitative interview study on normativity in family caregivers' experiences in Dutch home settings in a palliative care context

MM Haan, G Olthuis, JLP van Gurp - BMC palliative care, 2021 - Springer
Background Family caregivers, such as partners or other family members, are highly
important to people who desire to stay at home in the last phase of their life-limiting disease …

Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers

M Vermorgen, I Vandenbogaerde… - Palliative …, 2021 - journals.sagepub.com
Background: The attention of healthcare professionals is directed mainly towards the
recipients of care and often insufficiently towards family carers. However, an effective …

Caregivers' active role in palliative home care–to encourage or to dissuade? A qualitative descriptive study

A Weibull, F Olesen, MA Neergaard - BMC Palliative Care, 2008 - Springer
Background Spouses' involvement in palliative care is often a prerequisite for home death,
but it is unclear whether active involvement of the spouse, eg administering and being in …

[HTML][HTML] Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member

C Melin-Johansson, I Henoch, S Strang… - The open nursing …, 2012 - ncbi.nlm.nih.gov
Aim: The aim of this study was to explore relatives' existential concerns when caring for a
seriously ill family member as well as to describe interventions that meet these concerns …

Essential knowledge for family caregivers: a qualitative study

JK Angelo, R Egan, K Reid - International journal of palliative …, 2013 - magonlinelibrary.com
Background: Family caregivers are the backbone of the social care delivery system. With
cancer and other life-limiting diseases on the rise, the need for well-informed informal/family …