Background The aim of this article was to describe how caregivers and relatives shape
respect for autonomy in the end‐of‐life care for people with intellectual disabilities (ID) and …

Background Professionals and relatives increasingly have to deal with people with
intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care …

Background: Care relationships are crucial in tailoring the end-of-life care of a person with
intellectual disabilities (ID) to their needs. Yet, almost all studies on end-of-life care for …

Little is known about the involvement of nurses in the process of making end‐of‐life
decisions for people with intellectual disability (ID). The aim of this study was to clarify this …

Background The aim of this study was to investigate the process of end‐of‐life decision‐
making regarding people with intellectual disabilities (ID) in the Netherlands, from the …

Background The aim of this study was to explore the current status of end‐of‐life care and
dying of people with intellectual disability based on the experiences of staff in community …

Background: Not much is known about the process of end-of-life decision-making for people
with intellectual disabilities. Aim: To clarify the process of end-of-life decision-making for …

Background The aim of this study was to explore the way in which community living staff
engaged with people with intellectual disability (ID) about dying and death. Method Guided …

Background Adults with intellectual disability (ID) experience inequality in access to
healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at …

Background Due to increased life expectancy, just as with the general population, people
with intellectual disabilities are experiencing, and dying from, chronic and life‐limiting …