The implementation of large-scale genomic screening or diagnostic programmes: A rapid evidence review
GA Alarcón Garavito, T Moniz, N Deom… - European Journal of …, 2023 - nature.com
Genomic healthcare programmes, both in a research and clinical context, have
demonstrated a pivotal opportunity to prevent, diagnose, and treat rare diseases. However …
demonstrated a pivotal opportunity to prevent, diagnose, and treat rare diseases. However …
Using the findings of a national survey to inform the work of England's genomics education programme
S Simpson, A Seller, M Bishop - Frontiers in Genetics, 2019 - frontiersin.org
A national coordinated approach to workforce education and training in genomics is
essential for the successful implementation of whole genome sequencing and, more …
essential for the successful implementation of whole genome sequencing and, more …
Building a learning community of Australian clinical genomics: a social network study of the Australian Genomic Health Alliance
Background Adopting clinical genomics represents a major systems-level intervention
requiring diverse expertise and collective learning. The Australian Genomic Health Alliance …
requiring diverse expertise and collective learning. The Australian Genomic Health Alliance …
Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare
Clinical genomics is a system of multiple stakeholders and institutions. Yet, studies focusing
on the comparative perspectives of these stakeholders are limited. This study engages four …
on the comparative perspectives of these stakeholders are limited. This study engages four …
Current state of genomic policies in healthcare among EU member states: results of a survey of chief medical officers
W Mazzucco, R Pastorino, T Lagerberg… - … European Journal of …, 2017 - academic.oup.com
Background A need for a governance of genomics in healthcare among European Union
(EU) countries arose during an international meeting of experts on public health genomics …
(EU) countries arose during an international meeting of experts on public health genomics …
" Harnessing genomics to improve health in India"–an executive course to support genomics policy
T Acharya, NK Kumar, V Muthuswamy, AS Daar… - Health Research Policy …, 2004 - Springer
Background The benefits of scientific medicine have eluded millions in developing countries
and the genomics revolution threatens to increase health inequities between North and …
and the genomics revolution threatens to increase health inequities between North and …
[HTML][HTML] The impact of genomics on public health practice
H Burton, C Jackson, I Abubakar - British medical bulletin, 2014 - ncbi.nlm.nih.gov
Introduction: Genomic science is developing rapidly, and engagement of public health
professionals will be necessary to appraise new technologies and use them effectively …
professionals will be necessary to appraise new technologies and use them effectively …
Availability and funding of clinical genomic sequencing globally
The emergence of next-generation genomic sequencing (NGS) tests for use in clinical care
has generated widespread interest around the globe, but little is known about the availability …
has generated widespread interest around the globe, but little is known about the availability …
Making community voices heard in a research–health service alliance, the evolving role of the Community Advisory Group: a case study from the members' …
JL Wale, L Di Pietro, H Renton, M Sahhar… - Research Involvement …, 2021 - Springer
Abstract Background The Melbourne Genomics Health Alliance (the Alliance) is a
collaboration of leading hospitals, research and academic organisations, supported by its …
collaboration of leading hospitals, research and academic organisations, supported by its …
Enabling equal access to molecular diagnostics: what are the implications for policy and health technology assessment?
J Plun-Favreau, K Immonen-Charalambous… - Public health …, 2016 - karger.com
Molecular diagnostics can offer important benefits to patients and are a key enabler of the
integration of personalised medicine into health care systems. However, despite their …
integration of personalised medicine into health care systems. However, despite their …