Understanding patient preferences and willingness to pay for hemophilia therapies

SS Chaugule, JW Hay, G Young - Patient preference and …, 2015 - Taylor & Francis
… only patient preferences. Future research should focus on a comparison of preferences in the
… Research should also focus on understanding the preferences for newer treatment options …

Gene therapy for hemophilia A: a mixed methods study of patient preferences and shared decision-making

J Limjoco, CD Thornburg - Patient preference and adherence, 2023 - Taylor & Francis
therapy. Participants reported engaging Hemophilia Treatment Center, family, and the
hemophilia … us lead the conversation, because they understand that we understand the condition. …

Patient preferences to assess value IN gene therapies: protocol development for the PAVING study in hemophilia

E Van Overbeeke, B Hauber, S Michelsen… - Frontiers in …, 2021 - frontiersin.org
… the Patient preferences to Assess Value IN Gene therapies (… offs that adult Belgian hemophilia
A and B patients are willing to … While protocols of preference studies explaining the choice …

[HTML][HTML] Hemophilia treatment in 2021: Choosing the” optimal” treatment using an integrative, patient-oriented approach to shared decision-making between patients …

C Hermans, D Noone, G Benson, G Dolan, H Eichler… - Blood reviews, 2022 - Elsevier
hemophilia treatment and the individual patient's preferences… a patient-oriented algorithm
to facilitate and guide treatment … in treatment decisions—and helping patients understand this …

The hemophilia gene therapy patient journey: questions and answers for shared decision-making

M Wang, C Negrier, F Driessler… - Patient preference …, 2022 - Taylor & Francis
… to understand the elements of the specific patient journey that could best guide the hemophilia
community and facilitate treatment … The life cycle of PWH was aligned to patient journey …

Patient and parent preferences for characteristics of prophylactic treatment in hemophilia

R Furlan, S Krishnan, J Vietri - Patient preference and adherence, 2015 - Taylor & Francis
… long-term clinical outcomes and the difficulties of maintaining adherence to prophylaxis, it
is important to understand how individuals with hemophilia – and the parents of children with …

[HTML][HTML] Patient preferences in the treatment of hemophilia A: A best–worst scaling case 3 analysis

AC Mühlbacher, A Sadler, B Lamprecht, C Juhnke - Value in Health, 2020 - Elsevier
… To assess patient preferences for benefits and risks in hemophilia A treatment. … This
may help to adapt individually patient-tailored treatment alternatives for hemophilia A …

[HTML][HTML] Patient preferences for hemophilia a treatments: a discrete choice experiment

SX Sun, J Zhao, H Yang, E Wu - Blood, 2020 - Elsevier
… from this study improve our understanding of preferred treatment regimens for patients with
… improve our understanding of preferred treatment regimens for patients with hemophilia A, …

Patient perspectives on novel treatments in haemophilia: a qualitative study

EC van Balen, ML Wesselo, BL Baker… - The Patient-Patient …, 2020 - Springer
… A better understanding of all factors that may play a role in decisions about … of haemophilia
treatment in previous discrete-choice experiments that aimed to elicit patient preferences [24, …

Patient preferences in the treatment of hemophilia A: impact of storage conditions on product choice

B Tischer, R Marino, M Napolitano - Patient preference and …, 2018 - Taylor & Francis
… help understand how real-life use and ease of storage affect the choice of treatment product
(factor VIII) for patients with hemophilia A. Feedback was collected from 200 patients across …