Choice, tradition, and the new genetics: the fragmentation of the ideology of family

JL Dolgin - Conn. L. Rev., 1999 - HeinOnline
… that is not a distinction of matter but one of point of view. We do … The law has focused on the
autonomy of individual family … (HGP) is the joint effort ofsixteen nations to discover and map …

Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

C Schickhardt, H Fleischer, EC Winkler - BMC medical ethics, 2020 - Springer
have a great interest in accessing their raw data [1, 35, 36]. … and geneticists from the public
health and research sector, to … The duty’s overall goal is to strengthen patientsautonomy

[图书][B] Bodies in glass: Genetics, eugenics, embryo ethics

DL Steinberg - 1997 - books.google.com
… What is particularly useful about Harding's work, in my view, is … 205) in the 'fetal fascinations'
of the medical sciences of … invisiblised as autonomous persons and primary patients, their …

The new genetics: professionals' discursive boundaries

A Kerr, S Cunningham‐Burley… - The Sociological …, 1997 - Wiley Online Library
… relations on the new genetics; their views on the experience of … I don’t feel worried about in
this country, but there are certain … This suggests that in order to maintain their autonomy and …

Genetic screening and democracy: lessons from debating genetic screening criteria in the Netherlands

CG van El, T Pieters, M Cornel - Journal of Community Genetics, 2012 - Springer
… The country has an up-to-date health care system providing … Netherlands, parental autonomy
had been firmly established. … and over 36 years of age, it had become possible to have a …

[图书][B] Genetics and society: A sociology of disease

A Kerr - 2004 - taylorfrancis.com
… their choices can never be autonomous or based upon neutral … of genetics, and their
views on how genetics should be … focus in much of the current research on genetics is upon …

[HTML][HTML] The concept of “genetic responsibility” and its meanings: a systematic review of qualitative medical sociology literature

J Leefmann, M Schaper, S Schicktanz - Frontiers in Sociology, 2017 - frontiersin.org
… for producing risk information in genetics have increased substantially and quantitatively. …
of securing informed, autonomous decision making is central to professional GR: “In our view, it …

[图书][B] The gene, the clinic, and the family: Diagnosing dysmorphology, reviving medical dominance

J Latimer - 2013 - taylorfrancis.com
… Conduct of Care , moves her focus from the bedside to the … Populations in Western nations
might be living longer, but the … genetics is also changing the very nature of what we view to …

[图书][B] The new genetics and the public's health

AR Petersen, R Bunton - 2002 - books.google.com
… can be described, broadly, as a sociocultural perspective, in … premise is widespread was
underlined by a thirty-six nation … in their efforts both to avoid illness and to achieve autonomy. As …

[HTML][HTML] Refuting the right not to know

BE Berkman - Journal of health care law & policy, 2017 - ncbi.nlm.nih.gov
… recommendations generally focused on patient autonomy, … force of autonomy have led some
in the genetics community to … autonomy-based RNTK stems from the commonly held view