Purpose: In China, decisions regarding the treatment of seriously ill patients are usually
made by family caregivers. This study aimed to explore the association between the primary
decision-makers and the intensity of care given to patients with advanced cancer in China.
Methods: We conducted a survey of family members and other caregivers representing 828
cancer patients who died between July 2013 and July 2016. The survey asked:“After the
physician conveyed that the disease is incurable, what treatment did the patient and …

Outcomes 1. Describe a culturally informed approach to designing and conducting a
mortality follow-up survey in mainland China 2. Recognize the impact of primary decision
maker on end-of-life care among Chinese patients with advanced cancer Original Research
Background In mainland China, where decisions about treatment for seriously ill patients
were traditionally made by family caregivers, there is a paucity of literature describing the
association between the primary decision maker and the type and intensity of end-of-life …