Discussing death: making end of life implicit or explicit in paediatric palliative care consultations

S Ekberg, S Danby, J Rendle-Short, A Herbert… - Patient education and …, 2019 - Elsevier
S Ekberg, S Danby, J Rendle-Short, A Herbert, NK Bradford, P Yates
Patient education and counseling, 2019Elsevier
Objective To consider whether and how family members and clinicians discuss end of life
during paediatric palliative care consultations. Methods Nine naturally occurring paediatric
palliative care consultations were video recorded and analysed using conversation analytic
methods. Analysis Focusing on three consultations in which end of life was treated as a
certain outcome, analysis explored ways in which end of life was made either implicit or
explicit within these consultations. Our analysis suggests that end of life was made explicit …
Objective
To consider whether and how family members and clinicians discuss end of life during paediatric palliative care consultations.
Methods
Nine naturally occurring paediatric palliative care consultations were video recorded and analysed using conversation analytic methods.
Analysis
Focusing on three consultations in which end of life was treated as a certain outcome, analysis explored ways in which end of life was made either implicit or explicit within these consultations. Our analysis suggests that end of life was made explicit when: 1) ancillary to the current focus of discussion, 2) in relation to someone else’s child, or 3) specifically relevant to the local context of the discussion. More commonly, in all other instances in the data, end of life was made implicit during discussions relating to this matter.
Conclusion
This preliminary research indicates that the local context of a conversation can influence how end of life is mentioned and discussed.
Practice implications
Clinicians often are encouraged to promote honest and ‘open’ discussions about end of life. Our findings show that it is not necessary to explicitly mention end of life in order to discuss it.
Elsevier
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