Lay-caregivers are essential to the continuum of care in adult organ transplantation.
However, we have a limited understanding of the experiences, exigencies, and outcomes
associated with lay-caregiving for organ transplant patients. While much discussion and
debate has focused on caregiver requirements in relation to transplant candidate selection,
little focus has been given to understanding the needs of caregivers themselves. In
response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was …