In focus. Has patient autonomy gone to far? Geneticists' views in 36 nations.
DC Wertz, JC Fletcher, I Nippert, G Wolff… - The American Journal …, 2002 - europepmc.org
DC Wertz, JC Fletcher, I Nippert, G Wolff, S Ayme
The American Journal of Bioethics: AJOB, 2002•europepmc.orgWe surveyed genetics professionals, patients, and the public about rights to information, to
requested services, and to parenthood, posing difficult cases found in practice. In all, 2906
genetics professionals (63%), 499 primary care physicians (59%), 476 North American
genetics patients (67%), 394 French patients (51%), 593 German patients (65%), and 988
members of the American public (99%) returned anonymous questionnaires. Results
suggest a trend toward increased respect for patient autonomy since an earlier survey in …
requested services, and to parenthood, posing difficult cases found in practice. In all, 2906
genetics professionals (63%), 499 primary care physicians (59%), 476 North American
genetics patients (67%), 394 French patients (51%), 593 German patients (65%), and 988
members of the American public (99%) returned anonymous questionnaires. Results
suggest a trend toward increased respect for patient autonomy since an earlier survey in …
We surveyed genetics professionals, patients, and the public about rights to information, to requested services, and to parenthood, posing difficult cases found in practice. In all, 2906 genetics professionals (63%), 499 primary care physicians (59%), 476 North American genetics patients (67%), 394 French patients (51%), 593 German patients (65%), and 988 members of the American public (99%) returned anonymous questionnaires. Results suggest a trend toward increased respect for patient autonomy since an earlier survey in 1985; in most nations more would perform prenatal diagnosis for a couple with 4 daughters who desire a son. A minority (35% in US, 14% elsewhere) would perform PND for a deaf couple who want a deaf child, but most (94% in US, 62% elsewhere) would do prenatal paternity testing in the absence of rape or incest. About half (51%) would support a woman with fragile X who wants children. The trend to respect patient autonomy was greatest in the US and was least evident in China and India. In general, responses to these cases illustrate a shift away from population or eugenic concerns to a model of genetics focused on the individual.
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