[HTML][HTML] Information needs and information behaviour of patients and their family members in a cancer palliative care setting: an exploratory study of an existential …
I Fourie - Information Research, 2008 - informationr.net
Information Research, 2008•informationr.net
Introduction. Very little is known about information needs and information behaviour in
cancer palliative care: this paper addresses that gap. Method. An exploratory study with a
purposive, convenience sample of patients and their family members in a cancer palliative
care setting in South Africa was conducted. Individual semi-structured interviews were held
with patients, family members and healthcare professionals. Analysis. An interpretative
approach was followed. Transcribed data were analysed to identify aspects of information …
cancer palliative care: this paper addresses that gap. Method. An exploratory study with a
purposive, convenience sample of patients and their family members in a cancer palliative
care setting in South Africa was conducted. Individual semi-structured interviews were held
with patients, family members and healthcare professionals. Analysis. An interpretative
approach was followed. Transcribed data were analysed to identify aspects of information …
Abstract
Introduction. Very little is known about information needs and information behaviour in cancer palliative care: this paper addresses that gap.
Method. An exploratory study with a purposive, convenience sample of patients and their family members in a cancer palliative care setting in South Africa was conducted. Individual semi-structured interviews were held with patients, family members and healthcare professionals.
Analysis. An interpretative approach was followed. Transcribed data were analysed to identify aspects of information behaviour that may shed light on gaps in our understanding of the cancer palliative care context, as well as differences in the perceptions of oncologists, nurses, patients and family members.
Results. Even if there is no cure, patients and family members express different levels of, and fluctuating manifestations of, information need. Although factors influencing information behaviour were noted, the complexity, and interwoven nature thereof make it difficult to use these to predict information needs and information behaviour.
Conclusions. More attention should be paid to unexpressed and dormant information needs. A re-analysis of data and the literature should be used to explore models from information seeking and information behaviour as well as from other disciplines that might support a further study of the manifestations of information behaviour.
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