Barriers and facilitators for disease registry systems: a mixed-method study

M Lazem, A Sheikhtaheri - BMC Medical Informatics and Decision Making, 2022 - Springer
… as candidates for the interview due to their knowledge and experience. To achieve maximum
… different disease registry systems with different roles in these systems including registrars, …

Utilizing systems development methods in archival systems research: Building a metadata schema registry

J Evans, N Rouche - Archival Science, 2004 - Springer
… of users of the system. Hence capture of metadata about crosswalks is being trialled in the
prototype registry and the draft XML DTD, with the knowledge that the specification may have …

[HTML][HTML] Enhancing requirements engineering for patient registry software systems with evidence-based components

D Lindoerfer, U Mansmann - Journal of biomedical informatics, 2017 - Elsevier
… approach to requirements engineering for registry software adds aspects to the traditional
methods and accelerates the software engineering process for registry software. The method …

The Registry of Knowledge Translation Methods and Tools: a resource to support evidence-informed public health

L Peirson, C Catallo, S Chera - International journal of public health, 2013 - Springer
… To our knowledge, the NCCMT’s Registry of KT Methods and Tools remains unique in its
goals, service and products. At present, the registry only includes methods and tools that are …

Registry stakeholders

A Lübbeke, AJ Carr, P Hoffmeyer - EFORT open reviews, 2019 - eor.bioscientifica.com
… important stakeholder group with regard to the learning healthcare system. They are both
the donors of personal clinical data and the ultimate beneficiaries from the knowledge gained.’ …

[PDF][PDF] The Machinery of Knowledge: An Ontology-Registry for a Geospatial Knowledge Infrastructure

K Stock, M Small, A Robertson, F Reitsma… - Submitted to International … - researchgate.net
… The knowledge infrastructure described in this paper also provides an architecture that is
interoperable with other similar architectures and uses geospatial registry standards and digital …

Uses and limitations of registry and academic databases

WG Williams - Seminars in Thoracic and Cardiovascular Surgery …, 2010 - Elsevier
… Database is a research tool designed to generate new knowledge. Its inherent investigational
nature requires a much more extensive and detailed dataset than a Registry Database. …

The TREAT registry: evolution of knowledge from 1999 to 2017: lessons learned

GR Lichtenstein - Clinical Gastroenterology and Hepatology, 2017 - cghjournal.org
In this capacity, clinical registries play a large role in evaluating the safety of medications.
Registries represent “organized systems that use observational study methods to collect …

An overview of the British Columbia Glomerulonephritis network and registry: integrating knowledge generation and translation within a single framework

S Barbour, M Beaulieu, J Gill, O Djurdjev, H Reich… - BMC nephrology, 2013 - Springer
… improving education and knowledge translation to end users. In addition, a significant activity
of the BC GN Network is the implementation and oversight of the BC GN Registry to collect …

[HTML][HTML] Systematic review of cerebral palsy registries/surveillance groups: relationships between registry characteristics and knowledge dissemination

DS Hurley, T Sukal-Moulton… - … journal of physical …, 2015 - ncbi.nlm.nih.gov
The aims of this study were to provide a comprehensive summary of the body of research
disseminated by Cerebral Palsy (CP) registries and surveillance programs from January 2009 …