Secondary analysis of existing datasets for dementia and palliative care research: high-value applications and key considerations
LJ Hunt, SJ Lee, KL Harrison… - Journal of palliative …, 2018 - liebertpub.com
Journal of palliative medicine, 2018•liebertpub.com
Objective: To provide a guide to researchers selecting a dataset pertinent to the study of
palliative care for people with dementia and to aid readers who seek to critically evaluate a
secondary analysis study in this domain. Background: The impact of dementia at end-of-life
is large and growing. Secondary dataset analysis can play a critical role in advancing
research on palliative care for people with dementia. Methods: We conducted a broad
search of a variety of resources to: 1. identity datasets that include information germane to …
palliative care for people with dementia and to aid readers who seek to critically evaluate a
secondary analysis study in this domain. Background: The impact of dementia at end-of-life
is large and growing. Secondary dataset analysis can play a critical role in advancing
research on palliative care for people with dementia. Methods: We conducted a broad
search of a variety of resources to: 1. identity datasets that include information germane to …
Abstract
Objective: To provide a guide to researchers selecting a dataset pertinent to the study of palliative care for people with dementia and to aid readers who seek to critically evaluate a secondary analysis study in this domain.
Background: The impact of dementia at end-of-life is large and growing. Secondary dataset analysis can play a critical role in advancing research on palliative care for people with dementia.
Methods: We conducted a broad search of a variety of resources to: 1. identity datasets that include information germane to dementia and palliative care research; 2. review relevant applications of secondary dataset analysis in the published literature; and 3. explore potential validity and reliability concerns.
Results: We synthesize findings regarding: 1. Methodological approaches for determining the presence of dementia; 2. Inclusion and measurement of key palliative care items as they relate to people with dementia; and 3. Sampling and study design issues, including the role and implications of proxy-respondents. We describe and compare a selection of high-value existing datasets relevant to palliative care and dementia research.
Discussion: While secondary analysis of existing datasets requires consideration of key limitations, it can be a powerful tool for efficiently enhancing knowledge of palliative care needs among people with dementia.
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