Supporting the Health and Well-being of Caregivers: Co-design in Practice at a Canadian Cardiac Care Center
K Bouchard, J Brownrigg, B Quinlan… - Journal of …, 2020 - journals.lww.com
K Bouchard, J Brownrigg, B Quinlan, J Bilodeau, G Higdon, H Tulloch
Journal of Cardiovascular Nursing, 2020•journals.lww.comBackground Caregivers contribute substantially to patients' management of and recovery
from cardiovascular disease (CVD). Yet, the distress that many caregivers experience in this
role continues to be underresearched and their needs undersupported. Purpose Situated
within a patient engagement framework and adapted from experience-based co-design
guidelines, the process of developing a comprehensive caregiver support resource with joint
contributions from caregivers and healthcare providers representing multiple disciplines is …
from cardiovascular disease (CVD). Yet, the distress that many caregivers experience in this
role continues to be underresearched and their needs undersupported. Purpose Situated
within a patient engagement framework and adapted from experience-based co-design
guidelines, the process of developing a comprehensive caregiver support resource with joint
contributions from caregivers and healthcare providers representing multiple disciplines is …
Abstract
Background
Caregivers contribute substantially to patients' management of and recovery from cardiovascular disease (CVD). Yet, the distress that many caregivers experience in this role continues to be underresearched and their needs undersupported.
Purpose
Situated within a patient engagement framework and adapted from experience-based co-design guidelines, the process of developing a comprehensive caregiver support resource with joint contributions from caregivers and healthcare providers representing multiple disciplines is described. A discussion of the challenges encountered during the development of the caregiver support resource and recommendations for future sites embarking on co-design work are noted.
Conclusion
Developing feasible and relevant approaches, such as informational support instruments, to meet the needs of the growing population of CVD caregivers is essential.
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