[PDF][PDF] Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study

I MENCAP, J Wiley - www. nivel. nl nivel@ nivel. nl Telephone+ 31 30 2 729 …, 2016 - nivel.nl
Background The aim of this article was to describe how caregivers and relatives shape
respect for autonomy in the end-of-life care for people with intellectual disabilities (ID) and to …

Respecting autonomy in the end‐of‐life care of people with intellectual disabilities: A qualitative multiple‐case study

N Bekkema, AJE De Veer, C Hertogh… - Journal of Intellectual …, 2014 - Wiley Online Library
Background The aim of this article was to describe how caregivers and relatives shape
respect for autonomy in the end‐of‐life care for people with intellectual disabilities (ID) and …

'From activating towards caring': shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives …

N Bekkema, AJE de Veer, CMPM Hertogh… - BMC Palliative Care, 2015 - Springer
Background Professionals and relatives increasingly have to deal with people with
intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care …

Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

N Bekkema, AJE de Veer, CMPM Hertogh… - Palliative …, 2016 - journals.sagepub.com
Background: Care relationships are crucial in tailoring the end-of-life care of a person with
intellectual disabilities (ID) to their needs. Yet, almost all studies on end-of-life care for …

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

M Wiese, RJ Stancliffe, S Balandin… - Journal of Applied …, 2012 - Wiley Online Library
Background The aim of this study was to explore the current status of end‐of‐life care and
dying of people with intellectual disability based on the experiences of staff in community …

What constitutes good quality end‐of‐life care? Perspectives of people with intellectual disabilities and their families

K Cithambarm, M Duffy… - Journal of Policy and …, 2021 - Wiley Online Library
Background Due to increased life expectancy, just as with the general population, people
with intellectual disabilities are experiencing, and dying from, chronic and life‐limiting …

End‐of‐life decision‐making for people with intellectual disability from the perspective of nurses

AMA Wagemans… - Journal of Policy and …, 2015 - Wiley Online Library
Little is known about the involvement of nurses in the process of making end‐of‐life
decisions for people with intellectual disability (ID). The aim of this study was to clarify this …

Family caring of older adults with intellectual disability and coping according to loci of responsibility

T Iacono, E Evans, A Davis, A Bhardwaj… - Research in …, 2016 - Elsevier
Background A complex interplay of factors is evident in the response of family caring for
older adults with intellectual disability (ID). The aim of this study was to explore the …

Preserving self in the face of death and dying: a grounded theory of end-of-life care needs of people with intellectual disabilities

K Cithambaram - 2017 - doras.dcu.ie
INTRODUCTION There is evidence to show that people with intellectual disabilities receive
poor and inconsistent care at end of life, and that inclusion of people with intellectual …

End-of-life care supports and decision-making practices in specialist intellectual disability residential services

C Dalton - 2019 - cora.ucc.ie
Background: Over the past 50 years, the profile of people with intellectual disability (ID) has
changed because they are living longer with a wide range of co-morbid conditions, which …