Heart failure in adults with congenital heart disease
Heart failure (HF) represents the leading cause of morbidity and mortality in adult patients
with congenital heart disease. The nature of underlying congenital heart disease has …
with congenital heart disease. The nature of underlying congenital heart disease has …
Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association
ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …
P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
Last year of life of adults with congenital heart diseases: causes of death and patterns of care
L Van Bulck, E Goossens, L Morin… - European heart …, 2022 - academic.oup.com
Aims Although life expectancy in adults with congenital heart diseases (CHD) has increased
dramatically over the past five decades, still a substantial number of patients dies …
dramatically over the past five decades, still a substantial number of patients dies …
A grounded theory study exploring palliative care healthcare professionals' experiences of managing digital legacy as part of advance care planning for people …
S Stanley, K Higginbotham, A Finucane… - Palliative …, 2023 - journals.sagepub.com
Background: Digital legacy refers to the online content available about someone following
their death. This may include social media profiles, photos, blogs or gaming profiles. Some …
their death. This may include social media profiles, photos, blogs or gaming profiles. Some …
Expanding the paradigm for cardiovascular palliative care
Cardiovascular disease (CVD) is the leading cause of death worldwide. Despite medical
advances, patients with CVD experience high morbidity and mortality rates, affecting their …
advances, patients with CVD experience high morbidity and mortality rates, affecting their …
Health anxiety among adults with congenital heart disease
Adults with CHD face many potential health-related stressors, including cardiac symptoms,
treatments and interventions throughout the lifespan (including surgeries and other invasive …
treatments and interventions throughout the lifespan (including surgeries and other invasive …
Exercise capacity and cardiorespiratory fitness in children with congenital heart diseases: a proposal for an adapted NYHA classification
D Neunhaeuserer, F Battista, B Mazzucato… - International Journal of …, 2022 - mdpi.com
Objective: To propose and evaluate an adapted NYHA classification for children with
congenital heart disease (CHD) as a feasible clinical tool for classifying patients' fitness …
congenital heart disease (CHD) as a feasible clinical tool for classifying patients' fitness …
Life expectancy and end-of-life communication in adult patients with congenital heart disease, 40–53 years after surgery
C Pelosi, RM Kauling, JAAE Cuypers… - … heart journal open, 2023 - academic.oup.com
Aims Although survival of patients with congenital heart disease (CHD) improved
significantly over time, life expectancy is still not normal. We aimed to investigate how adult …
significantly over time, life expectancy is still not normal. We aimed to investigate how adult …
2020 ESC guidelines on treatment of adult congenital heart disease (ACHD)
FJ Ruperti-Repilado, C Thomet, M Schwerzmann - Herz, 2021 - Springer
Im August 2020 veröffentlichte die European Society of Cardiology (ESC) neue Leitlinien zur
Behandlung von Erwachsenen mit angeborenem Herzfehler („adult congenital heart …
Behandlung von Erwachsenen mit angeborenem Herzfehler („adult congenital heart …