Heart failure in adults with congenital heart disease

M Brida, D Lovrić, M Griselli, FR Gil… - International journal of …, 2022 - Elsevier
Heart failure (HF) represents the leading cause of morbidity and mortality in adult patients
with congenital heart disease. The nature of underlying congenital heart disease has …

Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association

ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …

P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …

Last year of life of adults with congenital heart diseases: causes of death and patterns of care

L Van Bulck, E Goossens, L Morin… - European heart …, 2022 - academic.oup.com
Aims Although life expectancy in adults with congenital heart diseases (CHD) has increased
dramatically over the past five decades, still a substantial number of patients dies …

A grounded theory study exploring palliative care healthcare professionals' experiences of managing digital legacy as part of advance care planning for people …

S Stanley, K Higginbotham, A Finucane… - Palliative …, 2023 - journals.sagepub.com
Background: Digital legacy refers to the online content available about someone following
their death. This may include social media profiles, photos, blogs or gaming profiles. Some …

Expanding the paradigm for cardiovascular palliative care

S Godfrey, JN Kirkpatrick, DB Kramer, MS Sulistio - Circulation, 2023 - Am Heart Assoc
Cardiovascular disease (CVD) is the leading cause of death worldwide. Despite medical
advances, patients with CVD experience high morbidity and mortality rates, affecting their …

Health anxiety among adults with congenital heart disease

A Roseman, L Morton, AH Kovacs - Current Opinion in Cardiology, 2021 - journals.lww.com
Adults with CHD face many potential health-related stressors, including cardiac symptoms,
treatments and interventions throughout the lifespan (including surgeries and other invasive …

Exercise capacity and cardiorespiratory fitness in children with congenital heart diseases: a proposal for an adapted NYHA classification

D Neunhaeuserer, F Battista, B Mazzucato… - International Journal of …, 2022 - mdpi.com
Objective: To propose and evaluate an adapted NYHA classification for children with
congenital heart disease (CHD) as a feasible clinical tool for classifying patients' fitness …

Life expectancy and end-of-life communication in adult patients with congenital heart disease, 40–53 years after surgery

C Pelosi, RM Kauling, JAAE Cuypers… - … heart journal open, 2023 - academic.oup.com
Aims Although survival of patients with congenital heart disease (CHD) improved
significantly over time, life expectancy is still not normal. We aimed to investigate how adult …

2020 ESC guidelines on treatment of adult congenital heart disease (ACHD)

FJ Ruperti-Repilado, C Thomet, M Schwerzmann - Herz, 2021 - Springer
Im August 2020 veröffentlichte die European Society of Cardiology (ESC) neue Leitlinien zur
Behandlung von Erwachsenen mit angeborenem Herzfehler („adult congenital heart …