The ethics of digital well-being: A thematic review
This article presents the first thematic review of the literature on the ethical issues
concerning digital well-being. The term 'digital well-being'is used to refer to the impact of …
concerning digital well-being. The term 'digital well-being'is used to refer to the impact of …
Facilitating informed choice about non-invasive prenatal testing (NIPT): a systematic review and qualitative meta-synthesis of women's experiences
Background Non-invasive prenatal testing (NIPT) can be used to accurately detect fetal
chromosomal anomalies early in pregnancy by assessing cell-free fetal DNA present in …
chromosomal anomalies early in pregnancy by assessing cell-free fetal DNA present in …
Women's perspectives on the ethical implications of non-invasive prenatal testing: a qualitative analysis to inform health policy decisions
Abstract Background Non-Invasive Prenatal Testing (NIPT) is a technology which provides
information about fetal genetic characteristics (including sex) very early in pregnancy by …
information about fetal genetic characteristics (including sex) very early in pregnancy by …
[HTML][HTML] Perspectives of pregnant people and clinicians on noninvasive prenatal testing: a systematic review and qualitative meta-synthesis
Background Pregnant people have a risk of carrying a fetus affected by a chromosomal
anomaly. Prenatal screening is offered to pregnant people to assess their risk. In recent …
anomaly. Prenatal screening is offered to pregnant people to assess their risk. In recent …
The value of freedom: A review of the current developments and conceptual issues in the measurement of capability
J Ubels, K Hernandez-Villafuerte… - Journal of human …, 2022 - Taylor & Francis
In health economics, proponents of the capability approach argue that the value of health
improvements should be evaluated us broad domains which reflect the capabilities of an …
improvements should be evaluated us broad domains which reflect the capabilities of an …
The ethical, legal, and social implications of genomics and disability: Findings from a scoping review and their human rights implications
M Vassos, R Faragher, K Nankervis, R Breedt… - Advances in …, 2024 - Springer
Objectives Genomic advancements affect people with disabilities. This paper presents the
findings of a scoping literature review on the ethical, legal, and social implications (ELSI) of …
findings of a scoping literature review on the ethical, legal, and social implications (ELSI) of …
[HTML][HTML] Impacting capabilities: A conceptual framework for the social value of research
There is widespread interest in evaluating the social impacts of research and other scholarly
activities. Conventional metrics for social impacts focus on economics or wealth creation …
activities. Conventional metrics for social impacts focus on economics or wealth creation …
Understanding the Normativity of Health Technology Assessment: Ontological, Moral, and Epistemological Commitments
B Bloemen, W Oortwijn, GJ van der Wilt - Health Care Analysis, 2024 - Springer
The inherent normativity of HTA can be conceptualized as a result of normative
commitments, a concept that we further specify to encompass moral, epistemological and …
commitments, a concept that we further specify to encompass moral, epistemological and …
The value of freedom: extending the evaluative space of capability
J Ubels, K Hernandez-Villafuerte, E Niebauer… - medRxiv, 2022 - medrxiv.org
Introduction Developing an instrument with an ambiguous construct can be challenging.
With the capability approach, this is argued to be case, since the concept of capability by …
With the capability approach, this is argued to be case, since the concept of capability by …
[HTML][HTML] Finding out the “gender” sooner: Ethical tensions and parental motivation in discovering fetal sex and chromosomal anomaly risk using noninvasive prenatal …
A Owen, GA Ratliff - SSM-Qualitative Research in Health, 2024 - Elsevier
Noninvasive prenatal testing (NIPT) has rapidly expanded in both utilization and scope
since it became available in 2011. While NIPT screens for a limited number of chromosomal …
since it became available in 2011. While NIPT screens for a limited number of chromosomal …