The ethics of digital well-being: A thematic review

C Burr, M Taddeo, L Floridi - Science and engineering ethics, 2020 - Springer
This article presents the first thematic review of the literature on the ethical issues
concerning digital well-being. The term 'digital well-being'is used to refer to the impact of …

Facilitating informed choice about non-invasive prenatal testing (NIPT): a systematic review and qualitative meta-synthesis of women's experiences

A Cernat, C De Freitas, U Majid, F Trivedi… - BMC pregnancy and …, 2019 - Springer
Background Non-invasive prenatal testing (NIPT) can be used to accurately detect fetal
chromosomal anomalies early in pregnancy by assessing cell-free fetal DNA present in …

Women's perspectives on the ethical implications of non-invasive prenatal testing: a qualitative analysis to inform health policy decisions

M Vanstone, A Cernat, J Nisker, L Schwartz - BMC Medical Ethics, 2018 - Springer
Abstract Background Non-Invasive Prenatal Testing (NIPT) is a technology which provides
information about fetal genetic characteristics (including sex) very early in pregnancy by …

[HTML][HTML] Perspectives of pregnant people and clinicians on noninvasive prenatal testing: a systematic review and qualitative meta-synthesis

M Vanstone, A Cernat, U Majid, F Trivedi… - Ontario health …, 2019 - ncbi.nlm.nih.gov
Background Pregnant people have a risk of carrying a fetus affected by a chromosomal
anomaly. Prenatal screening is offered to pregnant people to assess their risk. In recent …

The value of freedom: A review of the current developments and conceptual issues in the measurement of capability

J Ubels, K Hernandez-Villafuerte… - Journal of human …, 2022 - Taylor & Francis
In health economics, proponents of the capability approach argue that the value of health
improvements should be evaluated us broad domains which reflect the capabilities of an …

The ethical, legal, and social implications of genomics and disability: Findings from a scoping review and their human rights implications

M Vassos, R Faragher, K Nankervis, R Breedt… - Advances in …, 2024 - Springer
Objectives Genomic advancements affect people with disabilities. This paper presents the
findings of a scoping literature review on the ethical, legal, and social implications (ELSI) of …

[HTML][HTML] Impacting capabilities: A conceptual framework for the social value of research

DJ Hicks, C Stahmer, MK Smith - Frontiers in research metrics and …, 2018 - frontiersin.org
There is widespread interest in evaluating the social impacts of research and other scholarly
activities. Conventional metrics for social impacts focus on economics or wealth creation …

Understanding the Normativity of Health Technology Assessment: Ontological, Moral, and Epistemological Commitments

B Bloemen, W Oortwijn, GJ van der Wilt - Health Care Analysis, 2024 - Springer
The inherent normativity of HTA can be conceptualized as a result of normative
commitments, a concept that we further specify to encompass moral, epistemological and …

The value of freedom: extending the evaluative space of capability

J Ubels, K Hernandez-Villafuerte, E Niebauer… - medRxiv, 2022 - medrxiv.org
Introduction Developing an instrument with an ambiguous construct can be challenging.
With the capability approach, this is argued to be case, since the concept of capability by …

[HTML][HTML] Finding out the “gender” sooner: Ethical tensions and parental motivation in discovering fetal sex and chromosomal anomaly risk using noninvasive prenatal …

A Owen, GA Ratliff - SSM-Qualitative Research in Health, 2024 - Elsevier
Noninvasive prenatal testing (NIPT) has rapidly expanded in both utilization and scope
since it became available in 2011. While NIPT screens for a limited number of chromosomal …