Survival prospects in adults with congenital heart disease (CHD), although improved in
recent decades, still remain below expectations for the general population. Patients and …

Background Patients with adult congenital heart disease (ACHD) report that advance care
planning (ACP) is important, and that they want information about prognosis. However …

As a result of advances in the diagnosis and treatment of congenital heart disease (CHD), it
is now adult care providers, rather than pediatric providers, who are faced with the majority …

Background Most adults with congenital heart disease (CHD) are interested in discussing
matters related to advance care planning (ACP) early in the disease course, yet few such …

As a result of advances in pediatric care, the majority of patients born with congenital heart
disease (CHD) survive into adulthood [1]. Effective transfer and transition programs assure …

Highlights•First qualitative study of palliative care in adult congenital heart disease.•Patients
are interested and see value in palliative care and advance care planning.•Patients are …

Background Adult congenital heart disease (ACHD) patients with moderate or great defect
complexity are at risk for premature death. Although early engagement in advance care …

Congenital heart disease (CHD) is a chronic illness. Few adults with CHD are cured and
those with disease of moderate or great complexity remain at risk of premature death …

The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …

Aims To investigate the role of guidelines in structuring the clinical care for adult patients
with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe …