Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart …
M Schwerzmann, E Goossens, P Gallego… - European heart …, 2020 - academic.oup.com
Survival prospects in adults with congenital heart disease (CHD), although improved in
recent decades, still remain below expectations for the general population. Patients and …
recent decades, still remain below expectations for the general population. Patients and …
Perspectives on advance care planning and palliative care among adults with congenital heart disease
JM Steiner, K Stout, L Soine… - Congenital heart …, 2019 - Wiley Online Library
Background Patients with adult congenital heart disease (ACHD) report that advance care
planning (ACP) is important, and that they want information about prognosis. However …
planning (ACP) is important, and that they want information about prognosis. However …
Advance care planning and end-of-life management of adult patients with congenital heart disease
AH Kovacs, MJ Landzberg… - World Journal for …, 2013 - journals.sagepub.com
As a result of advances in the diagnosis and treatment of congenital heart disease (CHD), it
is now adult care providers, rather than pediatric providers, who are faced with the majority …
is now adult care providers, rather than pediatric providers, who are faced with the majority …
Facilitators of and barriers to advance care planning in adult congenital heart disease
M Greutmann, D Tobler, JM Colman… - Congenital heart …, 2013 - Wiley Online Library
Background Most adults with congenital heart disease (CHD) are interested in discussing
matters related to advance care planning (ACP) early in the disease course, yet few such …
matters related to advance care planning (ACP) early in the disease course, yet few such …
Advanced care planning in adult congenital heart disease: transitioning from repair to palliation and end-of-life care
E Troost, L Roggen, E Goossens, P Moons… - International journal of …, 2019 - Elsevier
As a result of advances in pediatric care, the majority of patients born with congenital heart
disease (CHD) survive into adulthood [1]. Effective transfer and transition programs assure …
disease (CHD) survive into adulthood [1]. Effective transfer and transition programs assure …
Barriers and facilitators of palliative care and advance care planning in adults with congenital heart disease
JM Steiner, A Dhami, CE Brown, KK Stout… - The American journal of …, 2020 - Elsevier
Highlights•First qualitative study of palliative care in adult congenital heart disease.•Patients
are interested and see value in palliative care and advance care planning.•Patients are …
are interested and see value in palliative care and advance care planning.•Patients are …
Advance care planning in adults with congenital heart disease: a patient priority
LX Deng, LP Gleason, AM Khan, D Drajpuch… - International Journal of …, 2017 - Elsevier
Background Adult congenital heart disease (ACHD) patients with moderate or great defect
complexity are at risk for premature death. Although early engagement in advance care …
complexity are at risk for premature death. Although early engagement in advance care …
Knowledge of and preference for advance care planning by adults with congenital heart disease
D Tobler, M Greutmann, JM Colman… - The American journal of …, 2012 - Elsevier
Congenital heart disease (CHD) is a chronic illness. Few adults with CHD are cured and
those with disease of moderate or great complexity remain at risk of premature death …
those with disease of moderate or great complexity remain at risk of premature death …
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …
P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
Adherence to guidelines in the clinical care for adults with congenital heart disease: the Euro Heart Survey on adult congenital heart disease
P Engelfriet, J Tijssen, H Kaemmerer… - European heart …, 2006 - academic.oup.com
Aims To investigate the role of guidelines in structuring the clinical care for adult patients
with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe …
with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe …