The relationship between the genetic counseling profession and the disability community: a commentary

AC Madeo, BB Biesecker, C Brasington… - American journal of …, 2011 - Wiley Online Library
Since the inception of the field of genetic counseling, the profession has had a tenuous
relationship with the disability community. Genetic counselors both offer prenatal diagnostic …

Disability training in the genetic counseling curricula: bridging the gap between genetic counselors and the disability community

E Sanborn, AR Patterson - … Journal of Medical Genetics Part A, 2014 - Wiley Online Library
Over the past two decades, disability activists, ethicists, and genetic counselors have
examined the moral complexities inherent in prenatal genetic counseling and considered …

Disability experiences and perspectives regarding reproductive decisions, parenting, and the utility of genetic services: A qualitative study

C Roadhouse, C Shuman, K Anstey… - Journal of Genetic …, 2018 - Springer
Genetic counselors adopt seemingly contradictory roles: advocating for individuals with
genetic conditions while offering prenatal diagnosis and the option of selective termination …

Attitudes of health care trainees about genetics and disability: Issues of access, health care communication, and decision making

KE Ormond, CJ Gill, P Semik… - Journal of genetic …, 2003 - Wiley Online Library
Prior studies suggest that knowledge and attitudes of health care professionals influence
patient communication and medical decision making. To study this dynamic in the context of …

Commentary: how individual and profession-level factors influence discussion of disability in prenatal genetic counseling

J Hodgson, J Weil - Journal of Genetic Counseling, 2012 - Springer
Abstract Hodgson and Weil (Journal of Genetic Counseling, 2011) reports on two interactive
workshops in which genetic counselors identified a broad set of counseling issues that may …

Attitudes toward genetic counseling and prenatal diagnosis among a group of individuals with physical disabilities

EA Chen, JF Schiffman - Journal of Genetic Counseling, 2000 - Springer
Few studies have been published on the attitudes of people with physical disabilities toward
genetic counseling and prenatal diagnosis. Articles in the lay press and social science …

Genetic counseling for prenatal testing: where is the discussion about disability?

E Farrelly, MK Cho, L Erby, D Roter, A Stenzel… - Journal of genetic …, 2012 - Springer
There are little data revealing how genetic counselors talk about disability in the prenatal
setting. We performed a qualitative analysis of 93 existing transcripts from simulated patient …

Examining genetic counselors' implicit attitudes toward disability

H Gould, SS Hashmi, VF Wagner, K Stoll… - Journal of genetic …, 2019 - Wiley Online Library
Genetic counselors have a unique role in healthcare that requires a balance between being
a patient educator and patient advocate when discussing disability. This study aimed to …

Genetic counseling and the disabled: Feminism examines the stance of those who stand at the gate

A Patterson, M Satz - Hypatia, 2002 - cambridge.org
This essay examines the possible systematic bias against the disabled in the structure and
practice of genetic counseling. Finding that the profession's “nondirective” imperative …

The role of genetic counseling in the elective termination of pregnancies involving fetuses with disabilities

CD Roberts, LM Stough… - The Journal of Special …, 2002 - journals.sagepub.com
In this study, 69 women were surveyed who, as a result of prenatal screening, knew they
were at risk for carrying a fetus with a disability. Results indicated that most women were …