Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities

JD Harrison, AD Auerbach, W Anderson… - Health …, 2019 - Wiley Online Library
Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement

EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …

The power of language: how to bridge the gap between healthcare research and patients–a scoping review

SA Dews, R Daley, A Bansal, J Preston… - … Medical Research and …, 2024 - Taylor & Francis
Objective The value of patient involvement to the design, conduct, and outcomes of
healthcare research is increasingly being recognized. Patient involvement also provides …

[PDF][PDF] Testing a Program to Increase Patient Activation Among Patients Prescribed Opioid Medicine for Chronic Pain

C Campbell, C Weisner, A Kline-Simon… - … DC: Patient-Centered …, 2019 - m.jimmypike.com
Background: Prescription opioid use can present challenges for patients with chronic pain
as well as for health systems. These patients typically have multiple chronic conditions and …