Objective To describe a novel, five-phase approach to collecting qualitative data from hard-
to-reach populations using crowdsourcing methods. Methods Drawing from experiences …

Objective: To examine relationships amongst parental post-traumatic stress symptoms,
parental post-traumatic growth, overprotective parenting, and child emotional/behavioural …

Background Individualized family-centered developmental care (IFDC) is considered the
standard of care for premature/medically fragile newborns and their families in intensive …

Objective This article characterizes the educational needs of parents following fetal or
neonatal congenital heart disease (CHD) diagnosis and generates recommendations for …

Objective: The paediatric cardiac ICU presents unique challenges to optimal communication
practices, which may impact participation in medical decision-making and long-term …

Infants and children born with CHD are at significant risk for neurodevelopmental delays and
abnormalities. Individualised developmental care is widely recognised as best practice to …

Objectives: Women carrying a fetus diagnosed with congenital heart disease often
experience significant distress because of their medical diagnosis. Given the well …

Developmental disorders, disabilities, and delays are a common outcome for individuals
with complex congenital heart disease, yet targeting early factors influencing these …

OBJECTIVES: To develop a model of family-based psychosocial care for congenital heart
disease (CHD). DESIGN: Qualitative study using crowdsourced data collected from parents …

Background Parents of newborns with congenital heart disease (CHD) are at risk for anxiety,
depression, and post-traumatic stress. Few studies have examined whether modifiable …