Background Parents caring for a child with a rare disease report unmet needs, the origins of
which are varied and complex. Few studies have systematically attempted to identify the …

AIM To review the qualitative and quantitative evidence of the benefits of peer support for
parents of children with disabling conditions in the context of health, well‐being, impact on …

In this article we set out to review the ways in which mothers of disabled children have been
portrayed within disability studies and the more broader academic literature. We argue that …

Peer-to-peer support provided by 'veteran'neonatal intensive care unit (NICU) parents to
those with current NICU babies is a legitimate and unique form of support that can …

Objectives This paper will report on the findings of a study which investigated the influence
of a befriending (parent-to-parent peer support) scheme on parents whose children have a …

The purpose of this study was to investigate the resilience displayed by families raising
children with disabilities and behavior problems. The question is why do some families do …

This study identified factors associated with support group participation among families of
children with autism. A survey was administered to 1005 caregivers of children with autism …

The unprecedented school closures in response to COVID‐19 have been associated with a
number of negative impacts on students and their families. In addition to these difficulties …

Objectives Congenital heart defects (CHD) can be detected at ultrasound but are sometimes
not diagnosed until birth, which can cause stress and heightened emotion within the family …

This paper describes a paradigm shift occurring in neonatal intensive care. Care teams are
moving from a focus limited to healing the baby's medical problems towards a focus that also …