Background: Symptom management for infants, children and young people at end of life is
complex and challenging due to the range of conditions and differing care needs of …

Children with cancer experience multiple symptoms at end of life (EOL) that impair their
health-related quality of life. Using the Preferred Reporting Items for Systematic reviews and …

Background Children with long-term illnesses frequently experience symptoms that could
negatively affect their daily lives. These symptoms are often underreported in health care …

Today, there is a shift towards care being given closer to the patient, with more children
receiving care in their homes. Care at home has proven to be a viable alternative to hospital …

Background Families with children who have life-limiting or life-threatening illnesses often
prefer to receive care at home to maintain a sense of normalcy. However, caring for children …

Objective: Over the past few years, an integrated approach of palliative care (PC) to chronic
and/or life-threatening conditions care has been widely used. Home-based PC (HBPC) …

Aims: Families were interviewed as a quality improvement assessment for palliative and
supportive care services for children. Methods: This exploratory qualitative study of family …

Objectives To investigate the views and experiences of general practice of children with life-
limiting and life-threatening conditions, and their family members, through secondary …

Objective The objective of this study was to measure the appropriateness of end-of-life care
for children who died with neurologic conditions. Study design Based on linked routinely …

In a previous study on the wellbeing of bereaved siblings of children with cancer we showed
that the death of a child may have negative consequences for bereaved siblings, even after …